Still waiting

Hi Bex

T2N1M0 Tonsil cancer HPV16 plus diagnosed in February 2023...

I had a swollen tonsil to start with ...GP said not to worry, then a little lump appeared in my neck I thought it was a dental problem, dentist said no... back to GP who said again not to worry... tonsil became infected ....back to GP ....different one.... recognised it as something sinister....sent to ENT....2 year process.... with no pain or any major symptoms.

Peter 

Hi Bex.. swollen lymph nodes in neck.. went to GP, had blood tests which came back negative... saw my dentist a few weeks later who asked if I would like her to refer me for further tests.. and here we are.. base of tongue primary.

Bex87 said:

Did anyone else have little or no symptoms

None.

I kept dreaming I had cancer (Oncologist asked me how on earth I had spotted the tumour and you can imagine why I didn't tell him)

Found a lump with my finger at the back of my tongue. It was causing no problems and you couldn't see it ...just feel it

Hi Bex

The only signal I got was finding a lump in my neck one night when applying moisturiser.  Nearly decided to ignore it, but informed my GP the following morning.  She hauled me in within the  hour and the rest as they say is history. Turned out to be a tumour at the back of my tongue and the lump was a lymph node which had come out in sympathy.  They got it very early.  If it hadn’t been for the whistleblowing lymph node I wouldn’t have known anything was wrong.  There were no other symptoms.

Liz

Hi only symptom I had was a lump in my collarbone no sore throat no issues earring or drinking. Gp put me on cancer pathway within 2 minutes of seeing hom. when I finally decided to home we’re in Spain for 8 weeks I discovered it first few days there ignored it thought u had pulled a muscle how wrong was I 

Hazel

My only symptom was what I thought was a swollen gland in my neck, which turned out to be a secondary to a large base of tongue tumour. I had no idea! That's quite a typical pathway for this type of cancer. 

I don't know what stage you are at - maybe put it in your profile? - but I wish you all the very best. This forum is a fantastic source of info & support. 

Catriona

Hi, 

I jad no symptoms at all that I would have noticed. It was my dentist doing a routine check when they found a lesion on the side of my tongue. 

My current "symptoms" are all post-surgery. Which is still better than letting anything nasty grow!