Week 5

Hi everyone,

A quick update, been a tough week this week 5. Pain ramped up last weekend so Monday had me knocking at the head radiotherapy nurse door!! Pregabalin dose was doubled and prescription for oxcodone liquid was added ,for breakthrough pain ,which has been a great help . Still on baseline of cocodamol in the back ground.

Pain and sores mostly at back of throat and sides of tongue. Producing lots of thick mucus mainly at night time, blood ,yellow and cacky brown in colours !! Just to add a bit of variety !! 

Feel very "drugged" now , zombie ish even. I do try to eat everyday but it doesn't amount to much.

A lovely RIG nurse came to the house Friday to show me how to set up my new pump feeder ,which after using once I know is going to be a game changer !! As I was struggling bolus feeding 6 bottles of fortisip through the day , especially with RT sessions at different times .

Nebuliser is earning it's £25 I paid ,using at least 4 times a day ,was told they would have gave me one !! Never mind. Daughter can use if kids are unwell .

Started doing Jigsaws now to keep the grey matter going , which surprisingly I'm enjoying!! Sharon has brought me a great Porsche Lego set to do also!! 

I'm glad I came to this forum as you all have helped with my questions and put my mind at rest. Which helps considerably I assure you. 

So that's week 5 done.

Oh and Laxido is my best friend!!!!

Thanks for listening.

Mark ....