Finally have my full diagnosis

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It's taken 6 months, 2 teeth removed & my tonsils out to get to this point but my final diagnosis is T1 N0 MO p16 negative, which is the best outcome under the circumstances, has been caught in the very early stages (thankfully)

Tomorrow I'm being admitted for 3 days n 2 nights to have my feeding tube put in & then start my radiotherapy on the Monday,

I won't lie, I am scared whitless

  • I won't lie, I am scared whitless

    It is really frightening especially as you have no control over what’s happening. The treatment is a real challenge but a day at a time it’s doable. Forums like this are self selecting which is why you get so many difficult journeys posted. Remember that most people get through and make a good recovery. They just don’t post here. 
    You won’t need chemotherapy which is a bonus. 
    Stay with us. We have your back. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Hi Loopyliz

    Treatment is very challenging, no easy way to describe it, I hope you manage to go through it with minimal side effects....it's OK to be scared...most of us were...

    Take care

    Peter

  • keep on top of your oral hygiene, and practice your jaw exercises while you're at it , and keep eating and drinking for as long as you can.. tell your team how you are coping each day.. they are not mind readers, so keep them informed.. take your meds, and tell your team when you feel the need to increase.. fingers crossed that it won't be too challenging.. there is light at the end of the tunnel.. and remember there is always someone here to help you through it.. I was always asking questions and asking for advice.Thumbsup

    Loz (61)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • Hi being scared is natural we all have been there take it one day at a time and you’ll get there. 

    Treatments hard but if I can do it anyone can 

    hugs Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • It's funny because I'm not much of a cryer & soon as I read "we have your back" I burst into tears like a numpty lol but thank you, I really appreciate that xx

  • Good luck for tomorrow Loopyliz, please try not to be frightened as you will be in good hands as many of us can vouch for. Remember we are all different and recovery and side effects differ from person to person but whatever route we take the cure rates are very good and even better as they have caught it early. Im pleased they are fitting a feeding tube in case its needed further into your radiotherapy. Wishing you all the best,take care.

                                                                                                Chris x

    Its sometimes not easy but its worth it ! 

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  • It's funny because I'm not much of a cryer & soon as I read "we have your back" I burst into tears like a numpty lol but thank you, I really appreciate that xx

    Ah bless you. Hugs

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Hi,

    Nothing to add to what has already been said by way of advice.  I had a relatively easy ride with great results in the end - I hope you do as well.  We are here when you need us, just shout!

    Peter
    See my profile for more details of my convoluted journey
  • Good luck with it all. Let us know how you are going xxx

  • I am sitting in the Beatson cafe in Glasgow at the moment, having just had my 4th radiotherapy. 

    If it helps any, I have found the staff and radiographers to be exceptionally friendly, talking me through the process and having a good laugh. I made the mistake of wearing my good luck socks for my 1st session on Monday and, having spotted these, the radiographers have insisted on new, funny socks every day. It’s going to cost me a small fortune after 6 weeks of this. 

    The staff have made it clear that I should ask them if I have any questions and not to ignore and later worry. For many people I would imagine this is a big help. 

    Best of luck