Bone mets

Hi McTonsil welcome to the forum. I don't know enough about your type of Cancer to answer with any useful information..However, by me answering this post it will pop it into the thread and someone will be along soon to offer more information for you. 

Hi. As you already know this is really rare. I can’t find any posts to help. The only conversation I can find is the one you had with Cazza the other day. There are protocols to deal with pain and there might be an avenue with immunotherapy. You mention that your partner’s oncologist has no experience with this so my advice would be to get a second opinion from somebody who does. 
I hope you find the answers you are looking for.