Difflam

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Was told to start using  Difflam mouth wash 4 times a  after first chemo. 

Found that it numbed my tongue and cheeks too much so was told to dilute it with water. Did anyone else feel the same.? Sore mouth hasn't kicked in yet ,only on day 4 of RT.also got bioxtra for lining mouth ,best time to use this ?

Cheers Mark

  • Did anyone else feel the same.?

    Yes. It’s anaesthetic which is why we use it. It’s an NSAID which reduces pain and inflammation. 
    Not much point in using it till you have discomfort? But I’d check that with your team. 
    I was told to water it down if it hurt to use it. That seems daft 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • got bioxtra for lining mouth ,best time to use this

    I used it to freshen my mouth. Still do. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Yes it's weird to use it before any pain , it dulls the taste buds too ,might just do it 2x day morning night until really needed.

    Thanks Dani 

    Mark

  • Yes but once you need it it’s best 10 minutes before you try to eat. 
    How are you feeling? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Hi my max fax consultant told me it takes your taste away after many uses. I was using it the odd time for my water blisters 

  • Hi Dani,

    Feeling tired that's all ,trying to keep a normal life pattern ,but the wind is out my sales at the moment  supposed to be going to Halloween party for 1hr ,not sure if I should have a beer ? I'd love one at moment .

    X

  • Personally I stayed off alcohol prior to and during my various treatments.  Mainly because it was easier to than for any clinical reason.  I am sure one won't harm you at this stage.  However, it just keeps the desire going longer into the period when you most definately won't want to drink.  After the treatment finished and I was feeling a bit better I was known to put both beer and gin through my PEG - much to the amusement of my dietitians.

    Peter
    See my profile for more details of my convoluted journey
  • not sure if I should have a beer ? I'd love one at moment .

    I would 

    Me? I was 10 days  into treatment and had a beer at Christmas time. Had to wait six months before I could really enjoy another. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • After the treatment finished and I was feeling a bit better I was known to put both beer and gin through my PEG - much to the amusement of my dietitians.

    Why?

    You can't taste it and that's the point of a decent ale or an artisan gin and Fever Tree..........

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge