1st chemo and 2 rads done

  • 20 replies
  • 88 subscribers
  • 889 views

Just come back from overnight stay at hospital for my first Chemo and 2 x associated radiotherapy.

Had 1st RT at 8:40 am .Chemo took 10 hours was started at 3pm and finished at around 1am.

Lots of runs to the loo to decant nearly 8ltrs of fluid !! So up all night really. Lots of more goodies to take home ,3 days of steroids,

Anti bacterial mouthwash X4 a day 

Anti sickness medication use when needed ? I was thinking of taking it anyway for preventative reasons ,but was told not too ,any thoughts on that would be appreciated.

Bioxtra mouth stuff .

What I wanted to know was anyone get side effects from their first chemo? Crisplatin .

Laying on sofa at moment just tired from lack of sleep I think.

Cheers everyone Mark x

  • Anti sickness medication use when needed

    No. By the time you need it it’s too late. Take it anyway. 
    I didn’t have chemo but I know plenty who did and that’s what they did. 
     had pretty heavy chemo and got away without being sick. She always put it down to taking everything she was given. 
    Im sure she will be along shortly. I know she and John are watching sexy flamenco in Granada tonight so maybe not till tomorrow 

    Well done on leaping your first hurdle. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Hi Mark, I was wondering how you got on.  Wow, what a marathon!  No wonder you are tired.  Get some rest and I'll message you.

    Hugs

    Hazel x

  • Also , has anyone got a template of what to take and when ?

    And when to eat / clean teeth / mouth wash ,I'm lost !!

  • Hi I wasn’t sick at all I took the anti sickness meds steroids etc after chemo. If you still feel sick or nausea comes on tell team next day there’s lots of other meds they can give you.

    yes off to watch a live flamenco show in authentic Granada in a cave up On the Sacramento area   I won’t be joining in 2 left feet.  
    well done on first few days. 

    Hazel 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a series of webinars on head and neck cancers. There will be updates as more are added.
  • I had spreadsheets for  food water as time moved on medication. Teeth easy first thing in morning leave duraphat on 30 mins. I did a lunch time brush then might time my routine took around 30 mins by end if treatment you’ve hardly time to breathe its teeth meds feed sleep repeat. Blog below gives my take on it. 

    hazel x

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a series of webinars on head and neck cancers. There will be updates as more are added.
  • Thanks Hazel.

    Will start taking it now as I feel there's a rumble in the jungle going on!

    Enjoy your evening 

    Mark x

  • Trying to get wife onto it as it's over my head at moment ,when did u use the anti bacterial mouthwash wash.

    Mark x

  • Hi Spider. 
    Good to catch up with your progress here! I can see why you stayed in last night! 

    I think a spreadsheet is a must. I will start drawing a template for mine now although my treatment doesn’t start until 11th November. I guess they may differ slightly for individuals although it would be a great idea to have a template to give people an idea. I will certainly post mine when I get to that stage.