Tongue cancer

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Hi after five days of not using the duraphat toothpaste my water blisters are still the same so it can't be the SLS in the toothpaste. The blisters in my mouth are relentless and appear every single day. I used difflam today and gelclare but it's still so painful. Will this pain ever end 16 weeks post RT. Plus I had sores two weeks into RT and they lasted for two weeks after RT then these water blistersCry appeared almost immediately after. Has anyone any other tips on stopping them or easing the pain. Will I have these blisters forever. I just couldn't cope . Cry

  • That’s awful. We’ve exhausted most explanations. Has thrush been mentioned? Could you be deficient in folate? Maybe ask for a blood test to measure your vitamin levels. 
    Time to get a proper answer from your oncologist. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Hi Dani, I have apt with GP on Tue for b12 bloods to see. Thrush hadn't been mentioned . It just seems to be this blocked saliva ducts. I'm at my wits end with this daily pain x