Nerve damage from radiation therapy

No I didn’t, thankfully

Do I remember correctly? You had 7 weeks of RT? 
Where is the pain? 

It radiates from just under my lower left jaw line shoots up into the inner ear area. Yes 7 weeks mon to Fri. They just keep giving me stronger or more specialised kind of pain meds and I’m starting to think this is going to be permanent it’s taken 10 weeks of pain to get to this point as I was fobbed off with “you’re doing to much”. 

I’m not a medic but I do know that ordinary analgesics do not touch neuropathic while other drugs do. Don’t wait for your routine review but call your CNS. 

I had a very similar pain where it shot up my inner ear but once the correct painkillers were prescribed it became more comfortable, this should not be a permanent issue. It never affected me standing up though, maybe Dani is right in contacting your nurse . Take care.

                                             Chris  

Hi there 

I am currently in same situation after 11 weeks since radiotherapy but was my second lot in five years I am like you wondering how normal is this and worry to case it is permanent pain but looks like it may not be I can stand up but I either Rock holding my ears or stamp and trying to eat is awful what about you ? When it flares it is nasty but like u told could be nerve damage from surgery or radiotherapy I will be asking again on my check 13 th of November and see what they say at oncology 

and let you know

Thank you , I’m currently taking pregablin co codemol and morphine to help with the pain so any answers would be helpful