Hi just another query I have. I seem to ask questions all the time. I'm in my ninth week post RT and had neck dissection in march. I was wondering about the scar tissue on my tongue. How long did you find it stayed before it turned the colour of your tongue again. I'm nearly four months now. My tongue on the dissection side is still very numb. It always seems to feel very big. I know I'm so early in the healing process but I worry if anything changes in my mouth. I feel that I am constantly checking my tongue for changes. I know the RT is probably still working on my tongue. I'm still swollen inside my left cheek . It can go up and down during the day. I'm doing lots of mouth and neck head exercises even when driving. Why am I constantly worrying. So much more now than ever . Thank you.
Hi. Dont expect any structural changes til six months. It really is early. Worrying about every little niggle is normal but it just stresses you out. Find something to do that keeps you occupied most of the day and leaves you tired in the evening. There has been much nerve damage from the dissection and the RT. Some nerves never grow back but it’s far too early to be expecting much that way
My tongue on one side remained devoid of the normal papillae which give the tongue its furry appearance for nearly five years.
My cheek is still slightly swollen in the inside and has a lichenoid appearance ( thin white lines) I have to be careful not to bite it
HPV driven cancer is largely cured and early local recurrence ( which can be classed as treatment failure) is rare
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
