Rig help

Yes the same problem as me and I hated it until I rely on it now that I can’t eat anything and like everyone on here says, a life saver. 
The only medication that worked on me was morphine which they prefer to give you at the end of treatment.

Morphine gives me instant constipation and compounds the pain. Feel like I can’t win

Thanks for the pic Donna, how you feed yourself sounds better than overnight purely that I’d probably be waking up every hour to check on it! I’ve had a message from Peter who suggests speaking to the RT team tomorrow so I hope I get a result. So pleased that everything has calmed down for you at long last and the end is in reach xx

I’ve been given 2 boxed of Laxido which help also one thing I can actually drink that doesn’t taste of salt!

Rogerb said:

Morphine gives me instant constipation and compounds the pain. Feel like I can’t win

You might well need it through treatment. I was on morphine from week four to twelve. You really need to take the Laxido/Movicol routinely. I was told to take it twice daily but you can take up to six at once if you are constipated

Hi RogerB

Laxido/Movicol work for most people but sadly didn’t help me in the slightest. The same with Morphine .

Please speak to your CNS or team about alternatives.

Lactulose works for me and I take it wheneverI need it .Sometimes stomach cramps are sadly inevitable.

It does get better but for some of us it takes a while for our bowels to normalise.

Debbie

12 weeks of morphine Dani, did you gradually have to come off of it?

Im on one 5ml teaspoon every 4 hours and a 72 hour patch. Also 20 ml ibroprofen every 6 hours but unfortunately can’t take the dissolvable paracetamol so I’m hoping to get some in liquid form today from the chemist. Hopefully that will stop the constant burning of my tongue and mouth.

Sorry for all the questions.

Sue x

Yes just a slow withdrawal over a few weeks. It’s really no problem. I was on 7.5 ml every four hours with liquid paracetamol four times a day in between so that I was taking something every two hours. Your patch will be fentanyl? Which is a synthetic opiate. I had long acting morphine twice daily which did the same. 
You don’t get addicted. That is a psychological thing but your body does get used to it which is why you taper. The last thing that went was the paracetamol 

yes this is my problem bowel wont open due to morphine laxido usually work for me but at the moment they are not but instead of 1 twice a day when i get home from treatment today i going to try the 2 together i also take stool softners twice a day that been prescribed but since friday nothing is working prune juice always works so i see if i can get someone to run to tesco for me ans get some i hate prunes but they really do get the bowels moving xx

If you read the instructions (just to confirm) I think you can take up to 8 movicol/laxido at once time to shift the blockage.  I've never had to do that thankfully, but I can imagine the effect of so much laxative!