No follow up scans

Suzanne75 said:

At both appointments I’ve been told there’s no need for any scans as there was no spread of cancer to the lymph nodes.

I was T2N0MO. ( no nodal spread either) and like you a had RT but no chemo. I had an MRI at ten weeks and a PET at 16. 
At T4 I wouldn’t be happy with no post treatment scan. Where are you being treated? 

Hi Suzanne. As Dani says  I wouldn’t be happy at T4 not having a pet ct scan or mri after treatment had completed.i was a T2 with nodal spread   Are you at a cancer centre ? You’re not on any trial are you ?

Hazel  

Hi Dani, I’m being treated in Glasgow. I’ve tried to find out if this is a new protocol but I’m not sure. I just know I would feel more confident if scans reflected the same.

Suzanne75 said:

I’ve tried to find out if this is a new protocol but I’m not sure.

I would ring your CNS to clarify. It seems a really negative economy. Do let us know what you find out. 

Hi Hazel, no I’m not on any trial. I was treated at the Beatson Cancer Centre in Glasgow but I’m back at my ENT consultant in a different hospital.

I was given information about joining a trial which if within the 50% selected I would get a scan at 12 months. My consultant is aware I would consider it just to get a scan.

Suzanne75 said:

I was given information about joining a trial which if within the 50% selected I would get a scan at 12 months. My consultant is aware I would consider it just to get a scan.

Is this PETNECK? 

Yes it’s PETNECK2

Hi I was treated between 2 hospitals Leeds cancer centre then returned back to mid Yorkshire but at week 18 I was scanned at Leeds and oncologist gave me my results. As Dani says the pet neck 2 scans st s year were you unsuccessful on getting on the pet neck 2 group. I was always told I would be scanned at Leeds. Can you contact your cancer ir Macmillian  nurse to clarify. 
Hazrl 

Right. PETNECK is for low risk patients. It involves a PET at a year and if no evidence of disease you go on self monitoring. While you do have supposedly guaranteed two week access to your team you aren’t seen in clinic again. It’s something to think about. I am a retired veterinary surgeon. I spotted and diagnosed my own SCC presenting to my consultant with this diagnosis. I am confident in what I see. Nevertheless I wouldn’t have enrolled if offered ( it wasn’t around when I was in my first year) 

The routine clinic review was my mental safety net if nothing else 

Hi Suzanne 

T2N1M0 Tonsil cancer HPV16+  finished chemoradio June 2023

Had PET/CT scan In September....Ninewells Dundee....all good.... certainly gives us peace of mind....a neck lump associated with cancer was biopsied....came back positive and was treated during chemotherapy..... now gone....

.If it was me I'd be pushing for a scan 

Peter