Hi Im about to move to fortnightly maintenance doses of cetuximab following a recurrence, inoperable and not curative - just finished 4 cycles of carbo/5FU/ Cetux anybody had something similar? How many maintenance doses could you take, what happened next etc - be blunt and straight with me please, my life insurance paid out this week on the basis of consultants report so I know realistically it’s not looking good but not a lot of info out there on the cetux maintenance pathway.
Hi Scoran25
I’m sorry I can’t help much. I do have a friend who is on a similar regime after he failed immunotherapy but I do t think he pops in here much.
It sounds as if it’s something you could ask in the ask a nurse section here.
https://community.macmillan.org.uk/cancer_experiences/ask_the_expert-forum/ask_a_nurse
Your CNS should be able to explain things to you as well.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
