Primary tonsil area spread to lymph nodes - immunotherapy

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Hi, I am new to this who thing, the forum and the disease. 

I went to the doc after a lump appeared in my neck. I had a bot of a swollen tongue for many months as I had dental work and we were adjusting teeth to stop them hurting my tongue. 

Anyway that led to xray/bloods (all clear on both), CT scan and ultrasound with needle biopsy. This showed cancer was in fact there. This was followed by another biopsy of the tonsil area direct and and MRI scan. I spoke with the ENT the next day but no results were in from the biopsy. 

So Friday, I met with the oncology specialist (I think)  who said the treatment would be chemo and immunotherapy. This is as long as my blood tests show I can have those. 

I just wonder has anyone else taken this route and what they can share about it as opposed to the chemo plus radiotherapy, which seems more common. 

  • Hi   and welcome.

    As far as I can recall some people have been given chemotherapy and immunotherapy before surgery and radiotherapy not as a standalone treatment. As you point out chemoradiation is the standard treatment, with or without surgery. 
    I think the best thing to do is to ask your team why they are going down this route. 
    Do let us know how you are getting on. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • I will ask and thank you for the input, very welcome 

  • Hi like Dani I can’t recall anyone having chemo snd immunotherapy as baseline treatment ask on Friday at oncology and good luck. Many questions pop on here we will try to help 

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/