Photobiomodulation (PBM)

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Not sure if anyone saw this on the BBC News website today not sure hw many NHS trusts offer it.

https://www.bbc.co.uk/news/articles/cg3ee8xl96eo

  • Hi

    There are a few patients here who are using it.

    These are the trusts offering it

    Nottingham University Hospitals NHS Trust (Late Effects)
    Royal United Hospitals Bath NHS Foundation Trust (On-Treatment for OM)
    Newcastle upon Tyne Hospitals NHS Foundation Trust (Paediatrics)
    University Hospitals of Leicester NHS Trust (On-Treatment for OM)
    Northampton General Hospital NHS Trust (On-Treatment for OM)
    Leeds Teaching Hospitals NHS Trust (On-Treatment for OM)
    Royal Cornwall Hospitals NHS Trust 
    East Suffolk and North Essex NHS Foundation Trust (Ipswich) 
    East Suffolk and North Essex NHS Foundation Trust (Colchester) 
    Katharine House Hospice
    University Hospitals Dorset NHS Foundation Trust

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • And these are the trusts that are evaluating it and may soon offer

    Royal Aberdeen Children's Hospital

    Birmingham Children's Hospital

    Leeds Teaching Hospitals NHS Trust (Paediatrics)

    Royal Devon and Exeter NHS Foundation Trust (On-Treatment for OM)

    Imperial College Healthcare NHS Trust 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Just read the article Baronia, thanks for posting the link it makes interesting reading and would be a great advance in helping with the side effects we all suffer. All the best.

                                                                                     Chris 

                                                                                   

    Its sometimes not easy but its worth it ! 

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  • Asked about it at Leeds, but they said only as part of a trial and that my FiL couldn't have it... Not sure why they didn't offer it from the start.

  • Thanks Baronia

    Sounds hopeful ,anything to help with the horrid mucus , lets hope other trusts can offer this to their patients x

    Debbie

  • lets hope other trusts can offer this to their patients x

    The units are supplied by Thor and they actually have some out on loan rather than trusts having to buy them. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Thats sounds a good idea Dani I will ask my Oncologist about it to see if its a  possibility for Weston Park Patients x

  • anything to help with the horrid mucus

    What it helps some people with is the condition called mucositis which is the inflammation and ulceration that radiotherapy causes. Saliva is made up of two portions; a watery part and a slippery mucous part. RT damages salivary glands and we lose the watery part of the saliva which then becomes thick and immovable till we recover.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge