Really ?????

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To be honest this made me laugh now I’m either going to Chernobyl ?  Or Radiotherapy.  

T1b N0 M0 SCC left vocal cord to be treated with radical radiotherapy over 4 weeks. 
To reduce the severity of the radiotherapy related side effects i would be grateful if you would prescribe the following items on repeat prescription:
Duraphat toothpste 5000 BD x 1

Flourigard oral rinse, 0.05%, BD x 1

Caphosol rinse, QDS x 2 boxes

Difflam rinse BD x 2 bottles

Saliva Orthana spray, PRN x 1

Bioxtra gel PRN x 1

Flamigel RT topically, BD

Polymem dressing (10 x 61 cm) non adhesive dressing

Aqueous cream BD

  • Hi Paul. Radiotherapy will impact saliva which puts your teeth at risk of caries which is why you have the toothpaste and the oral rinse.

    Caphosol and Difflam are to manage the mucositis ( ulceration) the RT will cause

    Saliva Orthana is a saliva substitute. I found it tasted of off meat....I think it's pork derived....horrible but some folk are OK with it

    Bioxtra gel is similar

    Flamigel and polymer are to help with neck radiation "Burns" ...You'll likely not need the Polymem with just 4 weeks of treatment

    Aqueous cream ...you must moisturise your neck thoroughly. I used Aloe Vera gel straight after RT as well as a moisturiser

    Yes....We go home with a pharmacy. My cupboard ended up being a large drawer.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Paul. Radiotherapy will impact saliva which puts your teeth at risk of caries which is why you have the toothpaste and the oral rinse.

     

    If you have time get a fluoride varnish from your dentist. Tell them you are having RT so that they cover the gum margins as well as the occlusal surfaces. That will give you three months of fluoride protection. It can become difficult to use Duraphat after a while in treatment and you will be drinking a lot of high sugar liquid

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Thanks for that I’ll give them a call.  

  • Sounds like they are very thorough! I had difflam during treatment but hardly used it . I have to buy Duraphat toothpaste from my dentist. All the best 

  • Get your oncologist to write to your GP. It should be on prescription and free 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Paul this is great to have all this put in place before you start, in many or even most cases, you get these as you go along, as you have the need for them. To get Duraphat out of my dentist was like pulling teeth (pun intended). You're in good hands by the sound of it.

    Ray.

  • I got all of it in a bag at the start. Plus laxido. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Booked tooth varnish. Thank you 

  • I got the lot on prescription. It’s this dental treatment that’s the expensive bit. Polish, filling. Tooth varnish. I’m thinking of having them out and a fireplace fitted. 

  • I have a lady called Kim who is amazing, she Checks appointments are being made and follows up to   Check how I got on, talked me through mask fitting, and what comes next.