My partner is 6 weeks past radiotherapy and chemotherapy treatment for base of tongue cancer. He has a RIG fitted and is feeding and medicating through that and is a while off eating yet it seems but the only thing he can bare to drink is cups of tea and water although he says water tastes awful still. He has the extremely dry throat and mouth and is desperate for something else to drink but everything we try seems to be too strong tasting for him. Wondering what others have tried or found to be successful?
Thanks in advance!
Hi Ginger
i am 8 weeks out of treatment. I drink hot summer fruits squash. I’ve only started eating more in the last 2 weeks. I have thin soup - chicken and noodle - which is ok.
I also have a peg I’m still using it for meds and water and have soy liquid food through a pump every other day. I’m cutting down on food as I eat more real food.
It gets a bit better each day but it’s very slow.
I still can’t taste very much.
lots of luck
Rupert’s Mum
Hi GingerWilma
I searched high and low for something to quench my thirst. The best drinks were fizzy, stirred a little if too many bubbles. Water was a complete no no for a while as it tasted bad. The best were diet cola and ginger ale and sparkling spring water.
Has he tried freshening his mouth with BioXtra mouthwash? It’s super gentle and emollient. Is he getting enough water in? I was told to have 3 litres on top of what I was taking as food.
Try a small pocket spray with bottled water in it to spray inside the mouth frequently.
As for food, maybe it’s time to try custard and ice cream for starters.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi I found bottled water more palatable than tap water we live in a hard water area and I could taste every bit of chemicals in it. I also boiled and partly cooked bottled water. As Dani says soda water Diet Coke and dry ginger left to go slightly flat. I must admit nothing quenched my thirst for a good whike but at least gave me something else to drink. I was oral feeding from week 3 albeit 75% was ensure and supplement with small amounts of food I aimed for 2500 calairies with 85 g if protein each and every day along with 2-3 litres of water. It is a full time job recovery I liken it to a marathon not a sprint and we all cross ghe line at different times.
Food wise yiu may be surprised toast well buttered and a poached egg were some of my frt foods.
here a link that might help
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi. I found that chocolate milk, specifically Shaken Udder, quenched my thirst, soothed my throat & got rid of vile mouthtaste. I drank it and water for months before I could bear coffee again (decaf). Also choc milkshakes when out with friends were a godsend. I’m 20 months post treatment today & tea still tastes horrible, but I love a decaf latte. I don’t drink alcohol anymore.
Hi Turi
Even now since my second lot of radiotherapy in 2019 I still find I can only drink milk based drinks and water. I do find water is a bit thin and I can choke on it as it tends to go down the wrong way and it doesn't taste quite right. The milk based drinks are thicker and I find these do not cause me to choke. My taste is still affected and I think that is the way it is going to be for me. I find banana or strawberry flavoured milk the best as they taste pretty much as they ought to but other flavours tend to not have the right taste. I also find smoothies made with fruit in milk taste fairly O.K. I think that what I drink now is a lot healthier than what I used to drink before. No more fizzy drinks or fruit juices as they just don't taste right and seem to taste very sweet. Tea and coffee are also off the menu as they just don't taste right. That is rather a shame as I used to love my cup of tea especially first thing in the morning.
Lyn
Sophie66
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