Neck Lymphedema

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Hi all,

I was wondering if anyone else had dealings with Neck Lymphedema after mouth cancer diagnosis.

I have completed 30 sessions of Radiotherapy and have a bulge under my chin. I have been advised this is due to Lymphedema and that I will receive an appointment in due course to look further into this.

It doesn't hurt but is rather unsightly.

Does anyone know of exercises or massage techniques I could start with whilst I await to be seen by a specialist?

It might be that I just need to loose some weight Slight smile

Any advice would be appreciated.

Paul

  • Yes I did and managed it on my own 

    You might as well start something while you wait. If it’s ignored it can become hard and difficult to get rid of. 
    This might help 

    todaymycoffeetasteslikechristmasincostarica.com/.../

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Good evening Paul, thankfully even after three operations I never suffered from this, It is because the drainage channels become affected and the fluid needs to be re-routed and this is where the massages help to reduce the fluid buildup, I'm sure your weight is okay Slight smile, Wishing you all the best.

                                                         Chris 

    Its sometimes not easy but its worth it ! 

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  • Same here Paul. I just finished in July, and I'm developing turkey chin! I didn't know there was a referral available. Thanks for the info Beesuit.

  • I didn't know there was a referral available.

    Every large hospital has a lymphodema clinic but waiting can be a problem. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Many thanks for all your responses. As Dani said, there is referrals available but the waiting lists are long.

    Dani - many thanks for the video. It is very helpful.

    Best wishes

    Paul

  • Dani - many thanks for the video. It is very helpful.

    Thank you Paul. If the lymphodema is uncomplicated it’s often all you need to do. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi daddy pig.  I had lymphoedema. I saw hospital team plus went privately to a lymphoedema specialist.  I am 2 years post now and has all gone , except, rather annoyingly, larger ‘bags’ under my eyes which I don’t like at all. !!!!  I do use the K tape occasionally (I have been shown how) and that brings it down straight away!   But usually I forget to do it!!  I am hoping that it will all gradually go away.  Best wishes.  Lizzie x