Hi,
I'm new here, but have been reading some of the posts which are all very inspirational as we all are thrown into these unexpected and traumatic battles for our health and futures.
I am 3 weeks post 30 sessions of radiation and 6 chemo for left tonsil cancer, which had spread a little to 2 lymph nodes in the neck.
I actually think I am doing pretty well and so this is a small grumble, but am maybe being impatient. I have a feed tube fitted, which has been a lifesaver. However, I can still swallow OK, albeit it lumpy and tight, and I have now started to try plain yoghurt, pureed food etc. I am surprised everything seems to sting the roof and back of mouth, enough to make the eyes water. I see no mention of this symptom in any other comments. The swallow works OK but its all very stingy in the mouth even where there was no direct treatment, its enough to put you off trying and to let it heal further????
As others have said, I realise its a slow process and its all healing day by day, but overall I am maybe doing well. Would love to get the tube moved asap, but maybe more patience is required!
Thanks for any replies, and good luck on your journeys!! Positivity is the key!!!
Hi EWN
Welcome to our community
Three weeks is really early in your recovery. It’s a marathon not a sprint.
If you’ve had RT to the back of your throat your soft palate and uvula take a real hit. No wonder you are still sore.
I was quite a bit better by six weeks, enough to be managing soft food, and turned a real corner at twelve. That seems to be what most of us report.
I was on morphine up to twelve weeks too
So don’t be disheartened. You’re on the right track and well done getting through treatment
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
