Still tired, 3 months post treatment

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Hi everyone

is it usual to be still tired three months after treatment ends? My poor husband just feels its never going to change...please tell me this is normal and that it will get better!!

Hes tired every day still. 

  • Hu What he’s feeling is radiation fatigue it’s a tiredness like no other. You can’t fight it the more you try the harder it is. Listen to yiur body if he needs sleep he needs it. It does get better exercise gently he,so I made sure I walked every day some days only  round  the garden. I became the queen if the Power Nap. Friends and famiky used to ask me did I need a nap when we went anywhere. Take a read  of this article written by a consultant it’s helped lots of people to understand how and why we feel as we do. 
    https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf
    Also make sure she’s getting enough calories I aimed for 2500 each and every day in the first 15 months radiotherapy depleted our bodies and our muscles waste 

    my oncologist said he would cure me plus he would make me feel iller than I ever did before and take a year out if my life he did all of those  But here I am 5 years later  

    https://www.yumpu.com/en/document/view/66263025/cookbook-by-andrew-gaylor-head-and-neck-cancer-survivor-2022

    hope thus helps Hazel 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a series of webinars on head and neck cancers. There will be updates as more are added.
  • Hello. I’m 17 months post treatment & still have days where I need a nap. 

  • Its incredible to me how long it lasts...

  • It just becomes the new normal I think

  • Hi Sometimes we forget what the  treatment has to do,it kills cancer .we live in a fast paced world click our fingers get in a plane  wake up in Australia  .Recovery is slow our bodies need ti heal. There an old fashioned word convalesence we don’t get to hear that often but it’s what helped me. I concentrated for once in me not in others the garden etc. it does get better I’m happily living my life now and have been for a good few years  

    hugs Hazel x 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a series of webinars on head and neck cancers. There will be updates as more are added.
  • please tell me this is normal and that it will get better!!

    To paraphrase everyone else Yes and Yes. 
    It’s really early days for him. Recovery is going to take a year and it’s sometimes one step forward two back. Don’t despair 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi,  sorry only just  read this, but my husband is nearly 5 months post and he is still taking late afternoon power naps. His fatigue levels are up and down.  We are alot more active obviously than when in treatment or just after so it is taking time to build up stamina whilst rest when ever needed. 

    We've been told a year before we can gauge how much the radiotherapy has taken. 

    Xx

  • Hi, sorry only just read this. My husband is nearly 5 months post treatment and he often needs a late afternoon  nap. We are obviously more sctive than we were in treatment or just after.  But it takes time to build stamina and his fatigues levels are up and down..   we were told a year before we can gauge what radiotherapy has taken xx 

    Keep smiling and heading towards a new life xx

  • Thanks for your reply Gail.  Its always good to hear othrs experiences. My husband only occasionally has to nap during the day.  
    i didnt quite understand what you mean by the last sentence...."we were told a year before we can gauge what radio has taken"

    Not a year before you have a scan surely?