Sinus Cancer

Hi Gizmo

I am so sorry to hear about your son's cancer. It must be so hard seeing your son going through this. As a mother I know that I would rather have the disease myself rather than having my children go through it and would do anything to help them. I had a different cancer to your son (in the jaw) so I am afraid I can't help with info on the treatment but I do hope someone on the forum can help.

Wishing all the best for your son and I do hope that you get some positive news on his treatment.

Lyn

Good evening Gizmo, so sorry to be reading this, i have never been through this and can fully understand your concerns, it's alarming to hear that it was not detected in his scan, i like you would be so angry and upset. Hopefully, the appointment for tomorrow will be a bit more positive and they will come up with a plan, Please let us know how you get on, I wish you and your son all the very best, good luck, and take care.

                                                                  Chris x

Hi Gizmo 

I am so sorry to read this post about your son. Do you have a Cancer Nurse at UCLH maybe they can put you in touch with someone who had or is going through same situation as you.

Mine is Tonsil throat base of tongue and 3 lymphSCC so sorry cant give any useful information.

Sending best hopes for you and your son

Hi Gizmo,

I was diagnosed with sinus cancer back in 2020. what was the outcome from the appointment he had on Wednesday? My tumour was stage 4 but it had not spread anywhere else and was contained in the ethmoid and frontal sinus. I had 2 rounds of TPF chemotherapy and then had 7 weeks of chemoradiation. 

Tanya

How are you now Tanya? 

Hi Dani,

No signs of any disease but radiation has affected the frontal sinus bone and frontal lobe. Having 6 monthly check ups and yearly scans. Have made peace that I will never be able to smell anything and coming to terms with the facial changes as the tumour has completely broken the bridge of my nose. I am back to full time working and do try to get in to the office for 2 days a week even though I should be going in for 3 days. I do have a very understanding manager. 

Tanya

You sound like you have a very positive attitude so you’ll go far. So pleased your heart and mind are in the right place. 

Hi Tanya, 

I’m so sorry to hear your stories. On Wednesday the doctors were positive unlike the one last week. He will have 3 cycles of chemo- cisplatin. Then 3 weeks of radiotherapy. 
They did go through the side effects and loss of taste and smell was one. Also loss of sight in his right eye. 
His tumour has spread from the nasal cavity into the brain and behind the right eye. 

Thank you so much. I hope you get better soon.

Thank you so much Chris, 

yes it was more positive. He has to have 3 cycles of chemo then 3 weeks of radiotherapy. But it felt more hopeful unlike last appointment. 
there might be side effects but we will deal with them as and when. 
we need to get through this first. 

thank you so much for your support