Recurrence Fear with no adjunctive treatment

Thank you all.

I guess I can stop fearing a recurrence,  today I have been told I have SCC in my lower right gum now. Doctors are shocked. Must be in my dna they say.

I'm going on another journey. Wish me luck

So sorry to hear this I have just had surgery to remove tumour in my soft palate I had left tonsil and neck node cancer in 2009 I had radiation and chemo and a neck dissection and then 14 years later here we are again 

it’s a hard pill to swallow 

I wish you all the very best in beating this awful disease again 

Thank you 

Hi Larrykins. One day at a time fingers that they come uo with a plan there’s a few who have had partialmjaw removal and replacement bone grafted. 
hugs Hazel x

Hi Larrykins

So sorry to hear your news. Life is a 'beach' sometimes and we can't chose our DNA but just take it as it comes. SCC in my lower right gum was exactly how my first cancer presented. I only had to have a partial mandibulectomy so did not need reconstruction. I hope that you are in the same position so you don't need reconstruction, however I did lose all the gum and teeth on that side of my mouth. Your medical team will have lots of experience so put your trust in them. It's another journey as you say but you will get through this one too. I just put my head down and did what I had to do as I still had lots of things I wanted to do with my life and was not ready to give up yet. You can manage this journey with the back up of your family, medical team and this forum. We are here for you every step of the way. You can get counseling through Macmillan if it will help to unpack your emotions at this time. Talking helps.

Sending you hugs and thinking of you.

Lyn

Once Again, thank you. 

It's becoming surreal at this point. 

I kind of trust in my medical team but once again they seem to have dropped the ball. 

I was operated 26days ago for RadioOsteonecrosis. They took a Biopsy and I went into hyperbaric oxygen chamber therapy. 

I went for the regular check up with my Maxillo-faciale surgeon and she was very shocked when she told me the results. The results that were sitting on her desk from 1st September. 

I know anger will get me nowhere but I'm getting sick of it. My T4 N1 diagnosed in January this year was after seeing a different ENT 3 times for over a year with nose bleeds and 30kg weight loss. "You look great"he said each time with a pat on the back. 

If feels like assassination. 

Time means nothing to them. It's literally life or death for me. 

Once Again I shall leave this country, Luxembourg, to be treated in Heidelberg where they know what they are doing. 

I guess the anger goes with the disbelief, sadness and ptsd but damn, it sucks. For everyone I know. I wish I had never left the UK sometimes. 

Anyway, none of this gives me strength. You all do, my kids do, my support group of 1, my SO does. Though I feel guilty and sorry that she has to go through all this again. 

You know what's going through my mind, or what's left of it, and I bless you for that. 

Rant over, fight begins. Round 3, ding-flipping-ding.

X

Hi Larry

I am so sorry, it does sound as though your medical team has dropped the ball. Maybe they are overworked but that doesn't help you to have confidence in them and confidence in your team is so important. I am glad to hear that the team in Heidelberg is able to give you the support you need.

I have been so lucky as my team in Australia has been exemplary and I have been on this road since 2013.

Rant away as you have every reason to.

Lyn

Hi Rant rave stamp your feet on here. We’re all happy to help. Digressing years since I was in Heidleberg with work.Am sure they  will come good for you eith s plan.
hugs Hazel  

Thank you Hazel.

So hard to keep it from my boys until I have a plan. 

So down right now. Not out, but really really lost.

Hi Larrykins

So sorry you are going through this once again I had surgery, radio and chemo at Heidelberg Feel free to dm me if you need info Spent 3 months there and still sometimes see Kopfklinik in my dreams Good luck with your treatment!