VLP mouth cancer

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Has anyone out there been diagnosed with VLP?  Apparently whole lining of my mouth unstable following Lichen Planus. I was a fit non smoker of 62. 
After a 14 hour op this year I have had 3 infections, one of which left half my face paralysed and I still have a bone infection. Within 5 months cancer back. Had a very painful scrape opposite side which they assured me had removed cancer again. Now it is back yet again within the month and I will need another major operation opposite side to the paralysis and will lose most of my remaining teeth. I’m so scared about how I will look and how I will eat. If there was any alternative I wouldn’t have another op but it seems the only alternative is to die. Has anyone else been through anything similar and come out the other side?