Feeding tube help

Hi Rizzle. Does he have the clip on it secure? Have a word with his team, at his next RT session.

Ray.

Hi, yes the clip is secure - we have our weekly meeting on Monday so will mention it then, thank you

Hi. Yes mine did fill the external part of the tube sometimes. This may happen if theres no air lock created when you close the valve bit. Shouldn’t be anything to worry about however the nutrition team will be best to check it just in case. 
The tube became really necessary for me in the later stages of treatment I hated mine at first then couldn’t be without it. 
it’s gone now , just a scar to remind me of its presence.

Thank you Ozzy, that it really helpful. He hates it too but knows it is necessary as he is already struggling to swallow - I think he is finding things scarier than he is admitting to which is why I joined this forum to at least try and put his mind at ease from people that went or are going through similar things.

Rizzle said:

I think he is finding things scarier than he is admitting to

Hi Rizzle....it's scary because all of it is out of his control and all he can do is sit tight, but it's OK to feel scared and I hope he shares it with you rather than bottles it up. You sound as if you are huge support. Sometimes men and feeding tubes really don't go together but it will be over soon and he will get better

Hi Rizzle, it is all very scary, however it is doable, and many of us on here have done it with good results, and so will your husband. Tell him to keep his team up to date, with side effects or pain, they will prescribe something for him. I had a RIG fitted it was a lifesaver for me, I was totally reliant on it from week 3, for about 10 weeks. His tube is there to help him through the treatment and recovery. When or if it gets too painful to eat, his tube will be a god send. All the best to you both.

Ray. 

Hi Rizzle welcome from me. It’s scary as it’s a situation neither of you have experienced before. It’s fear if the unknown,try to remain positive head and neck cancers respond extremely well to treatment as many of us in here can testify. No questions too silly to ask. 
Don’t let him struggle tubes there to help my n g tube was a lifesaver for me. 
Hazel 

Hello. I had a PEG fitted prior to treatment (30x radio & 6 x chemo). I used it from week 4 as I couldn’t eat. I linked up to a small pump & fed overnight. I hated it but it was a lifesaver. I put all meds in liquid form through it aswell as water for hydration & the overnight feeds. It’s not forever, once treatment is over & recovery gets underway eating can start again. I had my PEG removed at 11 weeks post treatment. It’s a slow frustrating process but those of us who have got through it are here to help. My advice would be to use the tube. Don’t fight it. Get the calories in that are necessary to get through treatment & recovery. Ask for a pump - overnight feeding takes the stress away of trying to eat. It leaves you free in the daytime to go to appointments, sleep, rest…

Any questions please just ask. 

Hi Rizzle,

I had my PEG fitted two days ago and its filling up too even though clamp on.I'm trying to keep the clamp quite high on tube to hopefully block it out.

Turi

Hi Turi, I’m due to have mine fitted on Wednesday must admit I’m quite nervous. How was it for you?