Pet CT Scan update, but also not!

Hi WesG, try not to worry, there are lots of people on here who have had inconclusive scans, after their treatment. Lots of trusts leave it longer before the first scan, for this reason. Hopefully your f2f next week will give you a better picture of things. Good luck.

Regards Ray.

Thanks for your message. I feel a little calmer for it. 

Hi WesG 

exactly this happened to me except they didn’t phone me first. The MDT met before my appointment. My PET revealed activity where the cancer had been. The choice was whether to wait and re scan in three months or to biopsy. Thank heavens I didn’t need to argue for a biopsy as a three month wait would have been awful. They got me in the next week. I was assured failure at this stage was practically unheard of. Luckily there was no cancer left. 

Hi Wes. All results needs discussing at m d t.  Sometime I wish the cns  wouldn’t ring patients. I was 19 weeks when I got my results directly from oncologist which I think  is how it should be.  I was scanned 18 weeks after treatment finished.
I never got the all clear I know very few who  have had those words the best we get is no evidence of disease. And you’ve responded well to treatment. . even 2 weeks ago when I had my last ent appointment the words all clear weren’t used. it’s a thing that you tend to see on tv but not real life. 
You’ll be jittery until next week but remain positive it’s extremely rare our treatment fails at the first hurdle. Hot spots aren’t unusual depends when scanning was done ?  If you’re showing hot spot hopefully like Dani was a false flag and you don’t have to wait too long. 
hooe this helps. 
hazel. 

Thanks Dani. Sounds like I need all of this following the MDT 

I think the waiting altogether has been a hard thing throughout. Glad you got good news 

I think I just read into everything. Even people's pauses. You're right the sharing and the terms used day to day in the media. 

Thank you 

Good evening WesG, i would not read anything bad about this phone call as they are not allowed to give any positive or negative information over the phone because it puts people on edge. Save all your questions and concerns up until your appointment next week, this is why i never look up anything on Dr Google as it can also make matters ten times worse. I was never offered a scan after my first cancer but looking back i wish i was just as reassurance and peace of mind. All the best for next week, try keeping busy to occupy your mind , take care.

                                                                             Chris 

Hi Wes. My husband was the same. Had his pet scan in April and was told there was hotspots but these could be inflammation due to RT so had repeat pet scan 2 months later and he’s all clear now. Was a long and worrying  2 months though 

Hi Annie, do you mind me asking what happened at respiratory? This is the situation I’m in now - neck clear but hotspot on lung according to PET. I think they want to do a biopsy.

Hi after pet scan showed hotspot in the chest area my husband was sent for ct chest. It was reviewed by Respiratory team and he was told it was nothing to be worried about. Was just inflammation due to the Radiotherapy. He didn’t even have to see the Respiratory team, his ENT consultant phoned him to let him know. Was a very worrying few weeks though. Like others have said Pet Scan picks up everything. Fingers crossed all goes well for you