radio therapy

Hi Bridget. Sorry to hear your news. It’s such a shame when care is split like this but once RT starts you should have joined up care from the radiographers at least. 
Macmillan may be able to help as he will be entitled to quite a bit so look here and give them a ring

https://www.macmillan.org.uk/cancer-information-and-support/get-help

Having a stomach tube ( I had a nasogastric tube placed when I couldn’t eat) is not fun but it will be a life saver. 
He will get complete food drinks free on prescription once he needs them. 
See if you can make sure he keeps on top of the pain. It is manageable if you stay in front of it. Tell him to tell the radiographers how he feels every day and not to try to be brave about it. 
RT is a tough treatment but it doesn’t last forever 

You’ll probably end up nagging him but that’s the way it goes I’m afraid. My husband never gave up on me when I was really down and I pushed him away a few times but I didn’t mean it. I was grateful he cared 

Stick around. There’s lots of help here as things progress. 

Hi Dani , thanks for that and he has pushed me away few times but i totally get he's stressed and to be fair he had bowel cancer 5 years ago. I will ring the helpline when i finish work and hopefully get things sorted i wont rest till i have sorted it as i can see how tired and worried he is. Once again thank you so much for that it's cheered me right up x

Hu Bridget can’t add to Dani’s post, like she says the peg will be a lifesaver I had ng tube fitted and it was my lifesaver. Does your hospital offer patient transport many cancer centres and hospitals do it’s worth asking about. Plus any family or friends that offer accept help don’t turn it away. 
plus remeber yo take time for yourself as you’ll be no use to him if you’re I’ll.

Hazel xx

Hi Raz , thank you and no the poor bugger just has me as all he's family live in Wales. I work fulltime and already taken time of once he was discharged from hospital . They have mentioned transport but he's concern was sitting waiting all day to be taken home and he's stubborn and impatient so wants to get home asap so he can rest . Thank you for the comment about myself as the girls i work are always saying the same and i can sleep for england so getting rest. I will call the helpline for sure.

bridgetb said:

Thank you for the comment about myself as the girls i work are always saying the same and i can sleep for england so getting rest.

Stay with us. You will need a little help along the way and there are plenty of people to watch out for you. We’ve all been there and done it. We are all not just surviving but thriving years later. 

Hello. I had a PEG & fed overnight via a small pump. The feed will be on prescription so no charge. I used it from week 4 of treatment (6 weeks chemoradiation for tonsil & lymph node) It was a lifesaver. 

As Dani says stick with us we’re all happy to help. 
Hazel x