Morning all,so we now have a treatment plan for my husband,picc line in 17th July,pre treatment assessment 21st July and first session of intense Chemo on the 27th July,still seems an age away because he is still in agonising pain despite his meds being increased a lot.The other problem I have now is he is barely eating and it is worrying me sick,he says it’s because he has a really bad taste in his mouth that he can’t get rid of and it’s making his food taste bad,he is also vomiting too.I’m trying to encourage him,also trying to keep us both positive.His Oncologist has said his cancer can’t be cured and it is like they said the best hope is to shrink it,he said with the size of it though it’s not the best treatment but the best they can do because surgery isn’t an option.I asked what we are looking at if it does shrink it,all they will say is let’s do 2 cycles of treatment which is 1 day at hospital for 7.5 hours of IV meds then a pump at home for 4 days,rest for 2 weeks then do it again,he said he will scan after that to see if it’s working because it will wipe him out and there is no point putting him through a 3rd cycle if it’s not working,so we asked what if it doesn’t work!! He said it will then be chemoradiotherapy,what does that mean?Is that to try and give him quality of life?? I’m petrified of losing my Husband,I’m 52 years old and he is 56,no age at all,the uncertainty is breaking us,surely they must know what we are looking at,my Husband just wants answers but most of all to be out of this horrific pain.I’m going out of my mind,not sure if any of you can offer advice but it does help me posting on here xx
Hi again. I’m sure his team can’t tell you how he will respond because they themselves don’t know. We all react differently. The have told you they can’t cure him which must be absolutely awful. It sounds like both treatments are to give you both some extra time together. Have they mentioned quality of life? Chemoradiation is a tough treatment but it can achieve wonders even if short lived.
Maybe your CNS can give you more information?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
