Tongue cancer - did yours come back?

Hi. There are not many people here with the sort of cancer you had. Most of us have HPV + oropharyngeal tumours. You might get more info from young tongues. They have active social media groups too 

Have a look here 

www.youngtonguesglobal.com/

OK thanks. I’m by no means young so that wouldn’t be appropriate. 

If you’re under sixty I think they let you in. I got chucked out because I’m over 70. 

That seems a bit of a random rule - 69 is young but 70 is not?! But each group to its own, I guess. 

HI  Not sure I can be helpful as my case is somewhat unique.  In late 2019 it was confirmed that I had an HPV driven cancer from a lymph node.  Despite some indications on scans and having my tonsils & remaining  lymph nodes removed as well as tongue biopsies no sign of the cancer primary.  I elected not to have RT.  They decided the body immune system had dealt with the primary.  Was advices a 60-70% chance of it re-emerging.  15 months later my surgeon noticed a very small lump in my tongue.  Biopsy confirmed it as a tumour.  Scans did not show it.  A few weeks later I went for a partial glossectomy only to be woken up to be told the tumour had once again gone.  Again elected on no RT.  I have had a few scares since including lumps in my tongue but none have been found to be cancer.  I am keeping further surgery and RT for another return but hoping it will never be used.

Hopefully your scare will be just that.