MDT meeting

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Hi everyone,

My husband was told last week that the fine aspiration of a neck lump contains cancer cells. He will have a full PET on Monday, then MRI and the MDT will discuss his case on the 12th. My question is how long after the MDT will he be contacted to be given the results of the various scans and the suggested treatment plan? I can’t seem to find any guidance on this.

Many thanks x

  • Hi Mrs Pooks

    If i remember correctly, in my case, i had the results of the scans fairly quickly after having them done. Then it wasn't long after that i had the 'pow wow' with my team to tell me what they were going to do.

    But saying that even though it was quick getting my results, everyone will say that it feels like a life time & that the waiting is the worst.

    They don't keep you hanging around, i know once diagnosed my feet didn't touch the ground.

    I hope that's helped.

    Good luck to you both 

    Cat x

  • It's very easy to get caught up in wanting things to happen quicky, and as Cat said, the waiting is horrible.

    That said it was always emphasised to me that getting the right treatment was more important than getting it done quicky. Your husband's team will gather all the info they need to tailor his treatment specifically for him, no "one size fits all" in this.

    Waiting is awful, I think all of us would agree on that, but try not to worry (easier said than done I know).

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    Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.

    http://mike-o.blogspot.co.uk/

  • Hi Mrs Pooks 

    You usually get an appointment at the next available clinic after the MDT. My head and neck clinics have always been on a Thursday with the MDT meeting the day before. They won’t hang around. 
    The  only time I was kept waiting was after my post treatment PET/CT and that was for five weeks but I suspect they was actually a very significant reason for that. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • I can’t seem to find any guidance on this.

    There are NICE guidelines for completing radiotherapy after surgery. 

    The rest is more flexible. 

    As Mike rightly pointed out the treatment plan has to be right and accurate. My plan was in place there weeks after diagnosis but I had to wait another five weeks for Linac availability… such is the parlous state of the Welsh NHS. 
    I’m still here four years later cured and well

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Mrs Pooks. The waiting’s by far the worst. It’s fear if the unknown. There’s a tried and tested route. Lots if planning ti be done. I was from first diagnosis ti first day if treatment 62 days. From my scans and mdt meeting just over 3 weeks which was busy with mask making ct scan for planning and meeting the radiotherapy team snd dieticians. 
    Hazel

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

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  • The scans will tell your husbands team where the primary cancer is. Lymph nodes are usually secondary spread most often from a tonsil or base of tongue. He will likely need radiotherapy and chemotherapy. The radiotherapy has to be finely targeted so he will have a plastic mask made to immobilise him on the treatment table in exactly the same place every time. This will be followed by a CT planning scan with the mask on. I was lucky to have mine one after the other but sometimes there is an interval of a day or two. Modern AI can make the treatment plan in a matter of a day or so but then there is often a wait for machine availability. A wait won’t make any difference. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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