Onkohealth?

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Hi all,

Has anyone else been referred to Onkohealth by their NHS care team?

I am wondering if it is worth doing...

At the moment (start of treatment) it just feels like another commitment to keep track of.

Thanks 

Steve

  • Hi Steve. I haven’t but I can say they are a Prehab organisation  and prehab can be exceedingly valuable in preparing you and getting you through cancer treatment. Personally I wouldn’t have bothered but there’s no harm in trying it out? If you do please let us know how you get on. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thanks, Dani. I'll report back.

    Diagnosed Feb 2023 with base of tongue cancer, oropharyngeal squamous cell carcinoma (OPSCC), HPV positive, staging: T4aN2CM0

  • PS. I did get quite a bit of psychological preparation for treatment from Macmillan nurses who saw me a few times after diagnosis but before treatment and every week throughout. They weren’t part of my CNS team… quite separate. I guess that was a type of prehab. I never ran into much trouble I couldn’t handle but in retrospect I think they would have picked me up if I had fallen. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Steve.  I had good support from my Trust (who are not one of the Trusts using Onkohealth), both physical and mental support.  This was outside of my direct team.  Although in the depths of covid so much was telephone based I found the prehab exercises very good for getting physically prepared for treatment and the regular calls to check on me comforting.  If this is a similar process I would go for it.

    Peter
    See my profile for more details of my convoluted journey