Advice needed

Hi Caroline. Just tell your nurses and ask if you could try something more local. I’m sure you’re not in much danger if having to have a feeding tube just yet. You don’t t get one for a tonsillectomy I’m sure a couple of days will make all the difference. I bet you solid food will be easier. It’s breakfast time. Let us know how you get on. 

Hi Caroline. I had both my operations by robot. I struggled with even liquids straight after my operations and all my meds were in liquid form. It does get better, I had ensured with gold top milk to start with and progressed to softer foods. I didn’t need a feeding tube, it does get better. My operations were in the July snd August, by Christmas I managed my dinner, with lots of chewing , but I managed it. It will feel like you won’t eat or drink again, I felt like that, but you will. You will get really good advice on this forum 

Hi aDebbbie 60

Thank you for reply, I’m still in hospital l, very sore but pain under control, they thickened liquids like tea and water so can drink without going to lungs  

but foods even weetabix potato gets stuck, soups not too bad I manage 3 spoons 

pleased to hear it gets better tho as it feels endless right now, while gurgling and spluttering ♀️ xx

I was convinced I was going to choke to death lol. It really does get better, they thickened my water in hospital. I could only managed a few spoonfuls of soup etc. few weeks after being home I progressed from shakes custards etc. my first crumpet with cream cheese was amazing. Now I can eat anything. Chin up you will get there xx 

You really was same as me…. My daughter brought me soup yesterday which I managed some of and I got half a yogurt down today, the food looks good but just won’t go down, it does feel like choking!

thank for advice nice to know I’m normal… ish 

feels like I have one black hole in there! 
where about a do you live are you uk?

im near Leeds in LGI

xx

My operation was Bradford Royal and I go to  St Luke’s for my follow ups. Keep up with the pain meds, that’s really important. My last operation was in the August and I managed Christmas dinner  My taste altered, some foods tasted awful, but again it does improve. My consultant said it can take a couple of years. I am 18 month on, and the majority of the tastes are back. If there are questions I cannot answer there are lots of good people on here who can and will support you. This forum was snd still is a lifeline for me x 

Hi I was treated at Leeds cancer centre and Ent at Wakefield. If you need. Hems radiotherapy you’ll be at St James Bexley wing. Any help just shout, hopefully you’ll be home soon. Have you met your oncologist yet ? 
Hazelmx

Oh not far away from me then!

iv struggled a bit more today swallowing meds, feels like my throat is swelling up, they get stuck!

hardly eaten a thing managed a yogurt this. Morning!

had a melt down today over meds food then my drain leaking and pain, but managed to pull myself back up… just xx

Hi Hazel,

if I need radiotherapy it is at Bexley, I didn’t get to meet the oncologist yet, as they had a meeting with my consultant and they decided surgery was best option, I meet the Macmillan nurse who will support me she was lovely and kind. But we keeping  fingers Crossed I don’t need it  

mum a bit low at the moment due to everything, i think also it’s hitting me what’s going on as it’s all been so far.

nice to have you hear to chat to xx

Hi  don’t worries meltdowns happen it’s perfectly normal. I cried in kitchen floor at 0300 more times than i can count. It’s a case if get up and shake yourself down and carry in. Fingers x no radiotherapy needed but if it is there’s plenty of us on here that will help. 
hugs Hazel x