3 weeks post radiotherapy

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I'm sitting here crying with my sick bucket, I've been constantly sick from week 3 of treatment and I'm still being sick now, I feel so weak I can only get from sofa to bed and bathroom, the taste in my mouth I'm sure is what's making me sick even water is horrible,  I can't eat any thing I'm totally reliant on night peg feeds but even some of this is not staying down, I feel so down I just don't know what to do anymore,  will this ever end ?

  • Hi Amanda. Yes it will. Phone your CNS and say you need some decent anti sickness meds

    My post treatment nausea was due to the morphine I’m sure 

    There’s a sort of feedback from your brain stomach and mouth and it all gets confused after RT

    i used Bioxtra mouthwash to refresh my mouth and diet ginger ale was better than water. 
    A lot of people can’t hack tap water either so try bottled spring water. 
    And it will end, I promise 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • oh gosh you remind me of me when I was in your position. Its horrible and seems never ending. I was very down, crying all the time, constantly nauseated and trying to keep my PEG feeds down. I couldn't swallow anything at all. It's a hateful situation but as Dani and many others here will confirm it doesn't last. Have you got support at home. I live on my own but in a way I was glad no one was there full time to see the state of me. It will definitely pass. Hold on to hope. I am 15 months post treatment now and that horrible time is a distant memory. Sending you many hugs

    Shirley

  • I’m so sorry Amanda, it’s a wretched feeling, I was the same from week 3, as Dani says, phone your consultant. From my own experience I was given various anti meds which I couldn’t keep down, they eventually found a combination of two meds that worked and I had to take from 5am , it took a number of weeks before this worked so i was seen more often and had days in hospital being rehydrated and monitored, so let your consultant know asap so they can start to sort this out for you and make it more manageable. It does eventually stop but just take it a day at a time and contact your consultant as soon as you can. Big hugs Debbie x

  • Hi Amanda. Please let your cns know there’s other anti sickness medication that you can have. A friend of mine had 6 different lots until they found one to suit. Have you tried Diet Coke to rinse your mouth out or soda water let it go slightly flat. 
    min 4.5 years out it does get better you may not thjnk do but it woll

    hugs Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Thankyou everyone,  I've managed to get an appointment with the Dr today so hopefully he can help me, it's hopeful reading all your messages but just seems there's no light at the end of the tunnel I've had so many anti sickness that don't work, I will try the diet coke as well, xx

  • Hi. This will end. There is light at the end of the tunnel. I know it seems impossible to believe at the moment, I felt exactly the same. The nausea is vile & exhausting. Glad you are using your PEG I was reliant on mine from week 4 for hydration, meds & night feeds. The liquid feed made me sick so I was switched to a lactose free one & that helped. Keep going, all this will be a distant memory in a few months. I am 8 months post treatment & can truthfully say that life is good, albeit with some adjustments. I had 6 phone counselling sessions via Macmillan as I was so low. The sessions helped a lot. We are all here for support. 

  • Morning Amanda, it’s so awful and I remember feeling that nobody understood the extent of my sickness until they saw me with my sick  bag which was a permanent feature for a few months. It took about two weeks of trialing different combinations before mine settled. Your team will be on the case now and as everybody says, this awful wretched time passes. Big hugs Debbie x