Hi all, another little update for anybody interested, and me to look back on!
Week 6 - A tough week, seem to have the pain mostly under control, it's the mucous I found difficult. Still managing to eat, but it is getting harder because my tongue is so sore. Trifles now off the menu as my tongue can't deal with the fruit bit...mostly porridge and soups. Oh and lightly toasted buttery crumpets are good for 'clearing the throat of debris' Supposed to be having fortisips but cant get anybody on the phone from pharmacy to deliver. Oncologist happy with my small weight loss though 
1 Week post treatment clinic - Still sleeping for England, its good not to have to go to hospital every day though, I can get so much more rest. Back end of this week everything seems to have stopped getting worse (except the mucous) and my skin really burning now. Had my clinic assessment yesterday, they are really impressed with how well i am doing. They said not many people are doing this well so soon into the recovery phase. 
. My skin has just started breaking in the last 24 hours but they said it was still good and have arranged for a district nurse to check on it next week.
I'm a bit peeved that I have had no specialist nurse all the way through treatment, so have not had some meds I should have and been given others but not told what it was for or how/when to use. Today they gave me some stuff to line my throat to help with the pain when swallowing ....6 weeks in...thanks! I had to fight my own battles with the hospital pharmacy...with the help of the radiographers. They admitted yesterday my allocated nurse was not available for me and I didn't actually have one ...all looked at the floor in embarrassment when I asked that question! They have all been lovely so no point getting cross at them, it just needed pointing out. I have nobody to help at home, don't know the neighbours, so it's been a lonely hard slog doing day to day things. Thank goodness for this place or I wouldn't have known anything. Anyway that's my moan over.
Finally got fortisips delivered yesterday afternoon...yummy 
Got until end of January before I see anyone now, so I'm hoping I am heading in the right direction and will be off pain relief by then. Food is a funny one, things keep changing all the time, I'm keeping it bland and soft for now though.
Ooh that went on a bit 
Hope you are all doing OK and wish you all the best for Christmas ...if you're having one....or if you're not 
️
Linda xxx
Hi Linda. Thank you so much for your update. It’s a bit of a slog but you are certainly a testament to human resilience. You are on your own so you’ve had to put your head down and get on with it to survive. It’s amazing what we can do if we have to and having to is what this treatment is all about.
Well done. This Christmas will be a bit of a write off but next year will be wonderful so I’ll raise a glass to you this weekend and for years to come.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Thanks for this update Linda, sometimes this does happen when you dont get the help or advice you need but im pleased you have pointed it out to them, always remember that you can phone and get to see your consultant etc if you are not feeling well or need questions answered, a lot of it is down to administration and not the Drs or nurses. Great you are making good progress , you will notice a change in your eating so its good you are on Fortisips even though these food supplements are not the best tasting they will help you maintain your weight. Good luck with your continued recovery and hope you have a lovely Christmas and New Year, glad to see the smiley emojis, keep smiling.
Chris xx
Its sometimes not easy but its worth it !
