New here

Hello all-

i have been reading here for about a week and decided to join even though I am in the U.S. i have not found a forum like this here. 

I am here to learn more about my step-dad’s condition, what questions to ask and how  to best support him. 

Several years ago he was diagnosed with squamous cell cancer of the throat and had radiation treatment. The treatment caused a new cancer and he then had surgery. Post -op pain was terribly mismanaged and he wound up going into rensl failure due to too much ibuprofen. (He regained kidney function). It was a long road back but he finally got rid of the peg tube and seemed to be gaining strength. Summer of 2021 the cancer returned and he had proton therapy. Since that time he has had tremendous pain amd decreasing ability to eat. He did many hyperbaric oxygen treatments but they did not seem to help. 

He started feeling even worse, losing more weight, much more psin. He went to have his esophagus stretched and they discovered that was fine but he had necrosis and an infection . The decision was made to place a peg tube again and ket him gain strength snd then deal with the necrosis. While still in the hospital, he got Covid and then was sent home too early and with no help. Jump forward a week and he was back in the hospital with incredible pain, covid, pneumonia, electrolye problems etc. He was at that hospital a week before being transferred to another hospital that supposedly can help. The new hospital doesn’t know anything about the necrosis, only a “massive infection “ and fistula. The medical professionals don’t communicate, apparently. So frustrating. At any rate, he is on vancomycin and an antibiotic for fungal infection. Supposedly he will hsve a lung ct. We are waiting for someone to read his mri. Kind of in limbo here waiting for decisions, results, prognosis. At least the hospital delirium has improved. 

Any thoughts on questions I should be asking. Sorry this is so long.