Wrongly diagnosed

Hi Kate

So sorry to hear about this, i was also misdiagnosed but only for a few weeks- it did spread to my neck during this time but they still got rid of it all.

I imagine the MRI was a local area scan and the CT scan was a wider body scan? i will cross everything that the results show the malignancy stayed local.

I dont know much about this type of cancer - others on the site will do. Everyone here has been through cancer however so you are definitely not alone on here, please ask any questions you have.

Trev

Thank you so much for your reply Trev. Greatly appreciated.  Helpful while I wait  

No problem, i remember how i felt when i was first diagnosed in 2020. This site was a massively useful source of support and information.

Hopefully they wont keep you waiting for the results.

Trev

So sorry to see you here Kate. As Trev says the MRI will be to see the extent, if any, of the tumour and the CT to see if it’s spread anywhere else. Do you have a histology report so far? 
Waiting is awful and all you can do is keep busy. 
Give your CNS a ring if your pain isn’t under control. You shouldn’t be left in pain. 
Best wishes and stay with us. Hugs. 

Thanks Dani. Keep busy I will. Its not pain its pressure. A numb pressure like a weight in my chin. Uncomfortable. My lips tingle and sting. I assume its the expected nerve damage from the op alongside the malignant cyst still being there. 

I'll stay with you guys thank you for the support and company...... Priceless. 

Kate just stick with it. Once you have a plan in place it’s easier. You have something to focus on rather than imagining all the horrors under the sun. My advice, for now, is to stay away from Dr Google. Modern science, oncology and surgery can achieve wonders and they usually do. More hugs xx

Thank you dani  

Hu Kate A belated welcome from me. As we all know the waiting’s the worst part, hopefully you will  get results soon. Try to keep busy, rant on here we’re all good at listening. 
With us on here no need to put a brave face on we have been there done it. 
hugs Hazel x

Hi Kate sorry to hear of your woes . unfortunately there is no quick way of getting results , I actually emailed my cancer nurse yesterday morning as was suppose to see consultant today which got shifted to next week which I wasn't happy about , but managed to see consultant for the news that I need an operation. Its not easy but you just have to bide your time Good luck 

Thank you Hazel and minmax. I'm beginning to understand the system and am reassured by your advice and support. Big huge thank you and hugs  .  Kitchen cupboards are in for it tomorrow