hi me again , my husbands had his rig tube for just over a week now , he got the stitches removed on thursday everything seems fine but when he lies down lots of air comes out the side of the tube and when he bent over earlier there was fluid leakage , just looked like water , is this normal ? no really wanting to phone the helpline unless needed , hes paranoid its going to fall out
Good evening debzy, your husband's tube or area around the tube should not leak, have you been shown how to change the water in the tube as it might have gone down a bit due to evaporation or the ballon is leaking and not sealing properly. It does happen where the ballon is faulty as it happened to me so had to get it changed. Normally you can feel the ballon against the stomach lining, if it does come out then just quickly push it back in and tape it in position and get it looked at A.S.A.P. I have had my PEG since 2009 and it does occasionally weep but have not experienced any bad leakage only when i did not put the cap on and the clamp came undone. Hope you manage to get it sorted, take care.
Chris x
Its sometimes not easy but its worth it !
Would definitely get it checked asap Debzy, I've had two extended periods of RIG use and what you describe isn't something I've ever come across. Doesn't sound like a serious problem but better to be safe than sorry.
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
