Now an inpatient :(

Oh Khrys OUCH. 
At least you are in a good place to be treated properly I’m sure they will take good care of you. Fingers crossed you’re home soon xxx

Oh no Khrys st least you’re in the right place kerp us in loop when you can 

hugs Hazel 

IV antibiotics continue, the swelling is slowly resolving. My phone still recognises me so I can’t be too grotesque! Peg was inserted last night, yet another level of torture for me. At least I won’t need to worry about nutrition anymore. I’ve already lost 14 kilos and feel ridiculously weak. The stringy saliva continues and I know now why you all recommend flat coke - it’s the only thing that disguises the taste of it! They managed to do my radiotherapy on Monday night, they cut a hole between my mouth and nose and were so gentle fitting the mask, but yesterday the machine broke (am I due any luck at all?!) and I’m waiting to see if I can go today. Keep smiling, as they say!

Hi one day at a time. A day or so makes no difference we all miss 2 days on weekends and if bank holidays sometimes 3 days. Keep on top of pain medication I didn’t have a peg but understand from.  others the first week csn ne uncomfortable. 
dmsll comfort but at least being in hospital you’ve not had wasted journey down to Malaga. 
every cloud etc. 

hugs Hazel x

I’m home! Feeling a bit better and more positive today. Managing a little orally and using my peg. Just exhausted and resting as much as possible. Onward to week 3 of radiotherapy but dreading the next chemo. Hope everyone is ok and coping with treatment. We can do this!

Hi Khrys 

So glad you’re home. Plod on. You’ll get there 

Hi Khrys pleased you are home one day at a time you’ll get there. Speak to your team re chemo not all of us complete the entire course. I had 2 of a planned 3. Radiotherapy is the  main, chemo just makes the tumour more receptive to radio. 
Week 3 was when I had n g tube fitted keep on top of painkillers my best advise. 
Hazel x

Great to hear you are back home Khrys, now is the time to let the PEG take the strain so you can channel your recovery on getting through the treatment. I remember i suffered from fatigue during my treatment and even had trouble walking in the garden, i just rested my body as much as possible and often had a sleep during the day, if you take meds ask for them in liquid form so they can go through the PEG, great last four words and i totally agree. All the best,take care.

                                                             Chris