Struggling a bit

Hi Aly. Mist of us start feeling quite a bit better by six weeks after treatment ends and by 12 weeks there is a corner turned. It’s a generalisation but a fairly accurate one. Of course we are all different. 
If the chemo has affected your hearing you must tell your team. Cisplatin can permanently damage your hearing. 
If you can’t eat it’s time to be drinking your Fortisips/ Ensures. You need to keep the calories and protein up to respond to the treatment well. 
I certainly  plateaued at the end of 4  weeks and the pain didn’t get any worse. 
You’ll get there. Listen to your body. Rest but take a turn round the garden or round the block every day. 
A day at a time 

Thank you Dani , I thought they might ease after 6 days , I thought I saw Jo write that after her first session , I’ve told a few nurses now about my hearing & nothings really been said , Dani I’m sll getting warn out opening a tin , I’ve just managed to eat scrabbled eggs & spaghetti xx

Often the pain the cancer is causing is eased by the radiotherapy that’s true but not always. The discomfort of the treatment soon catches up with it though. 
The way each of us reacts is different so don’t read anything into that. 
Be persistent with reporting your hearing problems. Tell your radiographers on Monday and tell them you are concerned with continuing the chemotherapy. When is your next one? 

That’s the strange thing which is good , I haven’t got any pain , I feel so pathetic & I’m quite a determined strong lady but I don’t think I can stay like this for another 6+ weeks it’s really getting to me & im only week one , I’m so teary all the time & I thought I could do this especially when you see all the vulnerable elderly people going through it . My next chemo is on the 6th June . I don’t even know who I can talk to about it as I had so many phone numbers thrown at me I don’t know who’s who , I did mention my ears to the macmillan nurse but nothing was really sorted xx

Hi Aly From the chemo you should start to feel more normal  hopefully start if next week have you been drinking enough i was on  2 litres of water a day. Plus you say you are  struggling to eat that will also have a knock on effect. The radiotherapy builds up over the following weeks , by week 4-5 as Dani says the pain can level out. It’s all a cumulative effect your  body is being treated toi things it’s never had before. I found I couldn’t really carry in as I did before running a home doing the garden looking after rest of extended family. It was me time I needed and me time I got. I delegated everything to other people. It’s not in our nature but needs must. 
As for recovery I took my ng tube out week 3 which forced me to orally swallow , by week 6 a corner gets turned for many if  us. I was determined to fly with hubby to Spain week 8 for his 60 th mad or sane  decision who knows but I did it. 
As for appetite sadly all I can say is my mantra while I could eat was food is fuel no enjoyment was gained but it was a means to an end. Hope  I’m not coming across harsh it was  the reality for me.
My oncologist apologised to me as I was fairly fit for a 61 year old he said he was going to make me feel iller than I thought possible and he did he also said he would cure me he did. 
Yiu have your peg please use it hydration and nutrition will help you feel better.Do yiu have an oncologist  meeting set up I met weekly plus met the nurses. Yiu really need to make people aware of the earring issues as chemo can be changed or at worse cancelled altogether. Radiotherapy is the main course of treatment, of course if oncologist insists it’s in your right  right to refuse m both Dani and I know a guy who did refuse.  The cisplatin can be changed to carbo platin which is gentler on hearing. 
As for focus I lost all interest in reading gardening I watched trash tv slept and went to hospital as weeks progressed. 
We are all different listen to yiur body and try using the peg for more nutrition 

Hugs Hazel x

Aly14 said:

I don’t even know who I can talk to about it as I had so many phone numbers thrown at me I don’t know who’s who , I did mention my ears to the macmillan nurse but nothing was really sorted xx

Aly, you talk to your radiographers who you see every day and ask them to sort something. There’s no getting away with it. You are going to feel rubbish. There’s nothing you can do so take Hazel’s advice and make it all me time. You need to concentrate on yourself and not make different scenarios in your head about how other people handle it. Trust me. I’ve done this and that’s how it goes. You will get through but you’re making it more difficult for yourself with all the what iffery. 
Just try to relax. Tomorrow does come and one of those tomorrows will be the end of treatment and another one will be your PET results telling you everything worked 

Hi. It sounds as though you have a little respite until your next chemo so I wonder if you might feel better inbetween x

Thank you Hazel , I think it’s been a bit of a shock to be honest xx

Yes I’ve told the radiologists because they are all I see at the moment , I will be giving the macmillan nurse a ring tomorrow xx

Oh I hope so Clare , I knew it would be hard but I didn’t expect this without feeling any better  but it’s only been a week & yes I’m so impatient that’s my trouble xx