Waiting for operation to remove my jaw bone

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Not in a good place right now lost my dad 4 weeks ago and got told I have cancer for the second time 2 days before his funeral. Couldn't tell anyone as we were all upset as it was. Now finding it difficult to tell family and operation is in 10 days. Soft pallette cancer and into the jaw bone so all coming out. I have told some family but not many I just don't know how too. Any advice?

  • Hi Joanie. Welcome to our community. So sorry to hear you have a second go at this and sorry your Dad has passed away. No wonder you're all at sixes and sevens. Might I suggest that you leave it up to the family you have told to let the others know? Might that be a solution? Then you can request the privacy you definitely need at this time. Just keep it to your nearest and dearest. I think that's what I would do. 

    It's your job now to concentrate on yourself and recovery. 

    Stay with us and let us know how you get on if you're up to it

    Best wishes

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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    • Hi Joanie. Sorry you’ve found yourself with cancer again don’t kniw hiw long ago your other cancer was. But evrn in the last few years treatment has advanced so much   We’ve a few in here thinking if  am sure she will pop on she’s in Australia si could be later . How awful for you 2 days befire your dads funeral. As for telling other people as Dani says you’ve told a few let them tell the others. Maybe ask one of them givec them a list and delegate.

    Rant on here we will help if we can. 
    hugs Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Joanne, so sorry to hear you have list your Dad and the double whamee of your return of cancer. I agree with Dani and Hazel, let the family members who know, speak to the rest of the family.concentrate on yourself and your recovery 

    Debbie 

  • Hi Joannie

    I am so sorry that you are having such a difficult time. It is sad enough losing your dad but then having another bout of cancer on top of that is very distressing for you.

    I understand your apprehension about your operation as I too have had cancer of the jaw which over time has resulted in a right partial mandibulectomy followed by radiotherapy, a left maxillectomy 6 years later followed by radiotherapy and then a right maxillectomy 2 years after that.

     Having cancer once is a great shock but when it occurs a second time I found it took a great deal more adjustment and time to come to terms with. I had thought that I had put it all behind me after the first operation and moved on and then had to face it again. However it is amazing how time helps along with the support of family and a wonderful medical team.

    I was also apprehensive about telling my family as I did not want to worry them especially as they had been through it all before and saying it out loud made it all too real. When I bit the bullet and told them they were all so supportive and were cross with me that I had not told them sooner. I have found that family support makes so much difference. As the others have suggested just tell the key people in your life and ask them to tell anyone else that needs to know as it is hard to go over it again and again.

    I have found after my operations that I am able to lead a fairly normal life with a slight exception with my eating but on the whole am able to do everything else I was able to do before.

    Put your faith in your medical team as they will do the very best for you. Make sure that you ask them all the questions you have as I found that having information helped me be better prepared for what to expect.

    Give yourself some time after your operation as it does take a little while to get back on your feet but you will get there.

    If you have any questions please ask them as someone on the forum will have experienced something similar and will be able to help.

     Wishing you all the best for your operation and recovery.

    Lyn

    Sophie66

    1. Just a small update I went to get my.operation but woke up with him having only done a large deep biopsy instead. I was under for 2 hours and have a plate to protect the roof of my mouth  I am going for a contrast CT Scan on my head neck and abdomen????? Then into see the consultant on Tuesday. All I really remember him saying is he couldn't do what he planned as the area is too big. Bit confused and left hanging jyst now
  • Oh not heard this very often, Joanie,  maybe they need to revaluate your situation because when they have noticed while looking around. Sorry it did not go as planned today but hopefully, they will come up with a different plan of attack, Thinking of you Joanie, please let us know how you get on, all the best, take care.

                                                                                                  Chris xx

    Its sometimes not easy but its worth it ! 

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