Rig feeding tube

  • 21 replies
  • 85 subscribers
  • 1633 views

I keep having panic attacks & anxiety over getting my rig fitted on the 4th .I know I’m being stupid & it’s got to be done but I’m petrified .I’ve never had an operation before , I’m worried about tSob pain & discomfort after it’s fitted , flushing it & actually feeding with it , it turns my stomach & I know it will be in place for months !SobSob

  • Oh Aly try not to second guess how things will go. You'll do it because you have to. Yes it might be a little painful at first but things settle fairly quickly. The way to avoid having it in place for months is to keep your weight up. The more you keep in shape the quicker you'll heal. I didn't have a stomach tube (NG for me) but I was eating enough to keep me going by six weeks post treatment and honestly I felt like death four weeks pervious to that.

    Deep breath. Do it because you have to stay alive. The 4th will come and go as will all the treatment.

    Keep your head up. You've got this

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Aly I can’t  help with rig/peg but can tell you my n g tube was literally a lifesaver for me. Look at ut has an insurance policy it’s there if you need it. Ok yiu are  in theatre but in the scheme of things it’s not an operation as such I hadn’t been under a general anaesthetic until my biopsy of my tonsil soft palate but knew it needed to be done.  As for cleaning it the n g tube needed cleaning and  p h levels checking which just becomes part if the routine, From experience there’s nothing worse that being unable to swallow my hospital didn’t routinely offer pegs rigs or n g tubes. so I had to plead with dietician after a weekend if being unable ti take pain medication or anythjng down my throat. You can do it so big girl knickers on and head held high. In a few mjnths time you’ll be in here helping others to overcome their fears. 
    Hugs Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Thank you Dani , I am an over thinker I know .It’s been painful since last June but I actually find it’s better for me when I am eating so I really really hope I don’t need to use it or not much xx

    1. Aly14
  • Thank you Hazel it just scares me , I’m quite a busy person , grandchildren & a household you know the usual , I just hope I don’t pull it out & after it settles , forget that it’s there , it just freaks me out but I don’t think I could manage with no pain killers if I can’t swallow xx

    1. Aly14
  • Just take things a day at a time. You will amaze yourself at how resilient you are.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • I’ve been told to take it one day at a time but it’s quite hard for me as I’m a worrier See no evil I can’t wait for the day I can relax & not overthink things , it’s been a long time xx

    1. Aly14
  • Hi Aly  which is why you will be ok with the peg it’s a sure fire way of getting through this treatment if you need it it’s there. . 2 weeks prior to me being put in cancer pathway I had cycled 1100 km whilst in holiday in Spain. I never sat still but soon learned how to listen to my body. We are back over in Spain today I cycled 65 km  today mostly uphill not electric bike pure pedal power so life goes in. In a years time cancer will be a blip in your life. I’m 65 now it certainly doesn’t define me. it happened I got treated I got cured  I’m living my life.  we have one grandson 3 step,grandchildren and 3 step great  daughters and another on the way. Life’s good and so will yours. You won’t pull the tube out mine was up my nose and I didn’t pull mine out !!!!a well nit until I was ready to week 3 of recovery. 
    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Blimey Hazel I didn’t do any of that before being diagnosed !! Haha , maybe I should try , thank you xx

    1. Aly14
  • Hi I didn’t start until I was 57 hadn’t ridden a bike since I was 16. You’re never too old. 
    something to look forward to 

    H xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Maybe I will !! Xx

    1. Aly14