PEG

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Morning everyone. 

How you all doing on this wet and windy morning?

Well it's been 2 weeks since PEG was fitted, and this morning I have woken up feeling like me again. Had a fab nights sleep and slept on my side, woke up with no pain Stuck out tongueStuck out tongue

I have had a lovely shower, and was able to shave my legs   so I don't look like a yeti now Rofl. My parents are coming to pick me up and we are going for a walk round the town centre.

Treatment starts 28th February. 

Take care xxx

  • Oh well done. It’s been a bit if a trial for you. Enjoy your walk. If I ventured out here in west Wales I would be swimming Joy

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Well done Zakaroo so pleased your PEG has settled down now , hope the walk went ok Slight smile. All the best for your treatment .

                                                                                                       Chris 

    Its sometimes not easy but its worth it ! 

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  • Great news. Good it's settled before treatment. Hope you enjoyed walk.

    Make sure you enjoy all your favourite food between now & 28th!! 

    Are you having Cisplatin? I didn't need to do my legs for about 8 weeks, but only had a bit of thinning on my head and the bald bit from radiotherapy that looked like an undercut. Take these silver linings when you can. 

    Take care, Gill x 

  • Hey,

    Yes I'm having cisplatin. I intend to eat all my favourite food lol was told to eat what ever i want!! I was told I would only lose a bit of hair around the hairline.  Really enjoyed getting out for walk even in the rain Rofl I am meeting a work colleague for a little walk today.

    Hope you are well 

    Xx

  • I was toldi woukd only lose a bit of hair around the hairline.

    Yes. Just a crescent shape at the nape. It grows back.

    Make sure you tell them if you get any hearing problems with the Cisplatin and good luck

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Gosh  I didn't  realise it could affect your hearing? Thanks for the heads up .

    Take care xxx

  • Thank you.  I really enjoyed my walk. I'm  meeting a work colleague for a walk today xx

  • Most folk have no problems but some do and it can be severe and permanent. It's no problem, the team change the drug to Carboplatin which is less toxic. Some people don't have the whole course, but that is no problem either. The chemo just tops up the RT which is what does the job. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Thank you for the info. I'm having 25 radiotherapy sessions and 2 of chemo. Xx

  • I had a bit of tinnitus before treatment and cisplatin can make it worse. Mine did increase during treatment, but it was monitored and I managed all 6 chemo. The tinnitus thankfully has virtually gone, better than before treatment even. 

    Just keep letting your team know any changes you notice and they will do what's needed. 

    I finished in April and hair regrowth is about 3 inches now, so I can tie it up with the rest again. Most people didn't notice it.