Hi I am really at the end of my tether. I was diagnosed with 5cm growth onTonsill and affecting 5 lymph nodes. I have completed 32 sessions of radiotherapy and 6 chemotherapies. Since last week the doctors are unable to get the pain under control. They started with a 12mig Fentanyl patch which has been increased to a100mig with no affect. I have mouthwashes, lidocaine spray, novaligin drops, ibuprofen, morphine drops but nothing helps my throat. All food apart from porridge causes immediate blistering in my mouth. I am in hospital in Germany and they want to feed me through the chemo port in my chest. So my question is does being fed intravenously help relieve the throat pain which nothing seems to help? Yours in desperation Greg.
Good evening Greg, sorry to hear that you are in pain, i don't think eating at this moment in time is helping matters, i have always had a feeding tube fitted because of the difficulty in swallowing so i would definitely go with the hospitals advice and opt to have your feed through the chemo port, it might give you a bit of relief from the pain. It sounds as if they are doing their best with the painkillers you are on as its a high dosage. Wishing you all the best.
Chris
Its sometimes not easy but its worth it !
It cannot be easy being in a different country and i have a strong idea that the covid virus has not helped matters, especially when waiting for appointments.
Its sometimes not easy but its worth it !
Greg
It sounds dire. I can’t give you medical advice but I have a friend who was in a lot of pain for treatment of an aggressive pharyngeal cancer. She got relief with Pregabalin.
TPN through your chemo port would st least give your mouth and throat a rest
Is there any chance you can get a nasogastric tube so that food gets into your stomach?
I had an NG tube for six weeks after my treatment finished and it saved my life
I hope you can find some help.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I have Ensures but there are others like Fortisip etc , maybe having an NG feeding tube will help you which is a tube that goes down the nose and into the stomach. A PEG feeding tube requires sedation and surgery
Its sometimes not easy but its worth it !
Fresubin Energy Drink, 6 x 4 x 200 ml, Mixed Box
Ensure Vanilla powder 400 g
Both on Amazon De. Just checked.
These are the sort of replacement foods we are given in the U.K.
https://www.amazon.de/dp/B00E6SO3QE/ref=cm_sw_r_awdo_navT_a_PHG1H7HN4CB3GXHARX8G
https://www.amazon.de/dp/B004YVZM0E/ref=cm_sw_r_awdo_navT_a_W9NTNT8NXP85ECXF55R0
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
