Lump on side of tongue

Thanks Linda

The consultants secretary has already responded, she feels it best for him to have a look at it- he is on holiday at present but she is going to add me to his clinic on the 7th feb.

Hi Trev. Brilliant that they’ve got back to you. Just try to put at back of mind until you go. Different hospital s obviously must have different policies. I was at a deducted cancer centre , after all clear u went back to local consultant at local hospital every 6 weeks first year then ever 3 months until year 3 now on 6 monthly checks.    But I still see oncologist yearly. But remember if you need then contact them. 
Hazel x

Oh fab.  Do let us know how you get on.

Linda x

Thanks hazel

I suspect i am being a paranoid hypochondriac, obsessing over every tiny bump, no way would i have thought twice about my tongue before my diagnosis.

But no she didn't make me feel like a nuisance at all and i am glad i contacted her

Thanks again all. 

TrevW said:

Hi Dani

I dont really have a 'team' anymore, i had my treatment under one consultant then was transferred to another consultant. I had 1 appointment with speech therapists during treatment but that was it really.

Ah. That’s a shame. I’m so lucky to have the same consultants and support staff who got me through diagnosis 

I rarely see the same consultant who initially looked after me. I personally think that is good as I get a differing view of some of the issues I raise and I find it useful to have those opinions - not that I don't trust my original consultant. I don know that the team is quite small and they do discuss me with each other prior to the appointment.

As to raising issues; they will never ignore you if you have a concern.  Sometimes I've gone via my dentist or GP if there has been anything concerning me that may be related to the cancer, but is not really immediately obvious.  But I do know that I've been seen appropriately by oral and plastics and the results fed back into my ENT team.  I've never been told, or indicated, that I'm wasting time and resources.  MY agreement with my team is raise issues early and thus treat early if necessary.

Thanks peter, knowing me it will heal up JUST before my appointment or something

'The new normal' for me thus far is nowhere near as bad as it could have been, but still takes getting used to.

Well i saw the consultant today

He is convinced it is dental trauma, he said u can see the line where im biting (i cant but he can).

He said my tongue is getting 'sucked' into the gap where i have a missing tooth.

He asked what my dentist thought (my dentist thought it was chronic traumatic ulcers and asked what my consultant thought!)

I guess its time to relax? these guys are experts and would be instigating investigations if they had the slightest concerns now?

I find it hard to ignore lumos in my mouth now, but i am reassured.

Thanks to all.

Spot on. These guys know what they are talking about. I have a line inside my cheek on the irradiated side that looks like leukoplakia. It isn’t, it’s where I suck  my cheeks in unconsciously to stop opening my mouth to snore at night
Keep well Trev 

Thanks dani, will definitely try to relax, and rely on my dentist/hygienist/consultant to check for me

It is hard isnt it, and thanks you too!