Peg site pain

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  • Hello again .. I had a peg fitted on mon prior to my chemo/ radiotherapy starting this mon I was fine for the first 24hrs but after that I've been in agony can't cough sneeze ect walking is painful had a tubergrame and there's no leaking I'm taking regular pain killers but not much relief and it's not infected. Anyone else had any pain ??? X
  • Slightly different but I had RIG tube fitted and it was quite sore after the anaesthetic wore off and it was vey uncomfortable for a few days afterwards.

    Speak to your Macmillan nurse or your GP if concerned - the sooner the better.

    Take Care,
    Bob

  • Thankyou Bob I've had the severe pain for 4 days now and I know if I contact gp they will just tell me to go a&e which I don't want x

  • This is fairly common I think. Certainly when I had my first one fitted I breezed through the first 36 hours then made to mistake of going to bed without taking any pain meds because it felt fine, woke up in the early hours in all sorts of agony. 

    What meds are you on? Maybe you need something stronger. It'll soon pass but I don't suppose that's much consolation right now.

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  • Thankyou for your reply im on paracetamol and codeine was hoping to have a bit of a let up before I start my chemo /radiotherapy on Monday x

  • FormerMember
    FormerMember in reply to Neck stiffness

    Those pain killers weren’t enough for me. It really is like being stabbed in the stomach. I would ask for something stronger.

  • Thankyou for your reply thats exactly how I feel I can't sneeze cough or walk properly x

  • I was in a lot of pain after my rig was fitted. I had my major op 6 days later so was on morphine then. My pain improved when the buttons fell off. 

    Good luck

    Wendy

  • Thankyou Wendy for your reply x

  • These stories of people having pain when having a PEG feeding tube seem to be on increase for some reason unless they are not prescribing the correct pain relief. It must be of the way they fit the "ballon type" ones compared to the old "disc type". I have not had any problems with my PEG although since the started fitting the balloon-type ones i have noticed they are not as comfortable and need changing fairly often because with me it reacts with the stomach lining causing irritation, so i just get the nurse to come around to my home and change it every 3 to 4 months, yet the old type lasted 18 months to two years but have to be changed in hospital, swings, and roundabouts Shrug. Hope you manage to get the pain sorted as it will make you feel a lot better, sorry for waffling on, all the best, take care.

                                                           Chris.

    Its sometimes not easy but its worth it ! 

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  • Sorry you've had the pain, have you managed to get anything stronger? Much like other responses, I was ok for a couple of days and then in agony. Had to go to A&E, was checked over and given codeine which worked for me. It eased pretty quickly then. Didn't help me get used to it, but bear with it. Many of us have relied on then later in treatment/ first weeks of recovery. Hardly notice mine now. 

    Hope all goes well with treatment this week.

    Ronnie