Although things are progressing fairly well four months after treatment, a recent development has been a tingling sensation down my spine and legs when I look down, especially when out walking. A little research suggests this could be Lhermitte's which can be a complication post neck dissection and chemoradiation?
Has anyone else here experienced this? It’s been happening for a few weeks now. Just curious.
Yes mine started just as I finished RT. It was never really bad. If it is it feels like electric shocks, really unpleasant.
2 years on I still have it but it’s improved vastly and not even a minor inconvenience.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Yes I had/have this, was quite often but nearly 8 months out of treatment now and it’s getting less and not so intense
Yes I’ve also got Lhermitte’s. Mine started a couple of months after radiotherapy finished and felt like an electric shock down my spine, legs and feet. It was only when I mentioned it to my HNC nurse that he asked if it just happened when I bent my head towards my chin. Up until then I hadn’t realised that was what was triggering it. Classic signs of Lhermitte’s he said. Apparently it will go in time.
Best wishes
Carol x
Strange nobody ever tells you about it. I learned here. Then did some research
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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