Lhermitte's?

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Although things are progressing fairly well four months after treatment, a recent development has been a tingling sensation down my spine and legs when I look down, especially when out walking. A little research suggests this could be Lhermitte's which can be a complication post neck dissection and chemoradiation?

Has anyone else here experienced this? It’s been happening for a few weeks now. Just curious.

  • Yes mine started just as I finished RT. It was never really bad. If it is it feels like electric shocks, really unpleasant. 
    2 years on I still have it but it’s improved vastly and not even a minor inconvenience. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Yes, same here. 

    Like Dani, mine has vastly improved but still catches me out occasionally!

    Linda x

  • Thanks both. That’s reassuring Thumbsup

  • Hi, yes I had it too after RT. Mine didn’t last long I’m pleased to say. Just another thing they don’t tell you might happen. 
    Fi 

  • Yes I had/have this, was quite often but nearly 8 months out of treatment now and it’s getting less and not so intense

  • FormerMember
    FormerMember

    Yes I’ve also got Lhermitte’s. Mine started a couple of months after radiotherapy finished and felt like an electric shock down my spine, legs and feet. It was only when I mentioned it to my HNC nurse that he asked if it just happened when I bent my head towards my chin. Up until then I hadn’t realised that was what was triggering it. Classic signs of Lhermitte’s he said. Apparently it will go in time. 

    Best wishes

    Carol x

  • Strange nobody ever tells you about it. I learned here. Then did some research 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge