Getting back to normal?

Former Member
Former Member
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hi everyone!  So I’ve just completed my 6 weeks of chemo radiation. Doing rather well really.  Anti sickness meds working. Radiotherapy burns not too bad. Not had a feeding tube as I can still eat porridge, soups, ice cream, custard & the protein drinks from dietitian.  Managed to not loose more than a couple of pounds in weight  

I actually feel good apart from my mouth and not eating properly  

I have some pretty bad ulcers on my tongue and sore gums. I’m on paracetamol, codine, & oramorph for pain but still managing. 

my question is recovery times and I know it’s different for everyone, but when did you guys start to eat proper things again? I’m so hungry and looking forward to eating something substantial again. 

any advice would be greatly appreciated!

regards

Samantha 

  • Used to love a ginger beer Minmax but i have to add water or lemonade nowadays as it taste to strong, Still tastes nice though Slight smile

    Its sometimes not easy but its worth it ! 

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  • Hi Bill yes i agree , i drink ales nowadays instead of lager , stout or Guinness is also a new favourite. Cheers.

                                                                                      Chris

    Its sometimes not easy but its worth it ! 

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  • Hi Chris Guinness is a stout.  A  opened tin put in a pint glass and lifted up as the glass fills gives a perfect head. God I am tempted to have a tin now as havnt had a drink since christmas lol . All the Best Regards Min

  • Ooh Min, I love sweet and sour sauce and prawns so I am going to try that too once I start to be able to increase the food I eat. How soon in to recovery did you manage that x

  • Hi Chris have you tried Vimto which is quite nice All the Best Min 

  • Hi Shell I was probably about 10 weeks out of treatment. You can ask for extra sauce or better still get a sauce on its own which lubricates the noodles for eating. Unfortunately I tried the prawn masala to soon along with the korma. Defo things are improving but I kind of screwed up yesterday making a vegetable and bean curry by adding a heaped tablespoon of curry power . Just a bit to hot for comfort. Might try a masala later lol All the Best Regards Min 

  • Sounds like you’re doing really well Min. Well done you. I remember when you were just starting out. Where did the time go?

  • Hi MarkEL  I hope You are  doing well also  . It was a bit like the twilight zone. It really lifts me up when I feel better and  normal again. I got out this morning for my walk which I really think helps. I just have to remember to start doing these  swallowing exercises as apparently it really helps down the line. All the Best Regards Min  

  • HI yes  the swallow exercises  should be done through treatment if yiu can and intomrecovery. I used to do mine in the car on way to hospital or at the kitchen sink. 

    glad you are getting g there 

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Hazel To be honest with you I have been swearing them when ill .  but have to get on with doing them daily. This is something that could really come back to bite me later down the line I think . All the Best Regards Marc