Getting back to normal?

Oh, good luck with the spaghetti rings.  I couldn't eat anything tomatoey after treatment due to taste and I still can't sadly.

Yes, eating the same thing over and over is boring but gradually you'll be able to introduce new foods.  Keep at it and keep experimenting.  To this day I persist in trying something that I havn't been able to eat in the hope that one day.........

Linda x

Hi Linda I am doing the same and had chinese sweet and sour prawns with noodles which went down well Regards Min

Hi Samantha I found that whilst i had a slow decline in my ability to eat over the 6 weeks of treatment plus about 10 days afterwards, I bounced back in a few weeks.  Not to be able to eat anything & everything but I stopped needing to drink fortisip after 2-3 weeks & the pain improved by 10 days post treatment & I no longer needed oramoroh. I finished my treatment mid November & made a good go of Christmas lunch. The things I found difficult then, are still not great - meat & bread primarily as they are too chewy & dry. I also cannot eat chilli or anything spicy as it still burns 2.5y later. 

Well done on getting to where you are, it's all going to improve from here on in.

Take care

Cathy

I managed the spaghetti hoops with the yolks from 2 fried eggs. Delicious after Weetabix and rusks for ages lol.

I can’t wait until I can eat Chinese, a chicken chow mien sounds lovely right now xx

HI Shell12 I was quite surprised but the sweet and sour sauce works and prawns with out batter taste fine. The Indian king prawn masala is still  a bit to hot that I cannot handle , shame really as I use to love a vindaloo but time will tell Regards Min

Thanks for mentioning prawns Minmax, I'm making a Singapore prawn curry this evening and I'd forgotten to take the prawns out of the freezer! 

I used to be a rock sold Madras and Vindaloo man before treatment but still can't cope with either sadly.

Min I can’t wait to try sweet and sour prawns with noodles. That sounds like a dream right now.

Got to get through week 7 and 8 as my treatment ends tomorrow and then I can hopefully start to build back up again.

Roll on better times x

Like you, I had no feeding tube Shell. Just try to keep eating and drinking through the next 3 weeks or so especially. Even if it’s just Ready Brek, custard, Fortisips and soup, keep eating as much as you can. Did they give you some Oxetacaine to help over the next few weeks? (It numbs the throat before eating.)  I found that really useful, along with Difflam, in keeping going. I’m now 14 weeks post treatment and eating pretty normally. Taste is back, even chocolate , and the only limiting factor now is a lack of saliva. 

In answer to your question, 6 weeks after treatment ended was a real turning point for me and by three months I was feeling pretty good. If you have a spare few hours read my profile! I added to it each week so it’s ridiculously long but it charts my recovery over what you’re about to go through.

Ring that bell tomorrow in the assurance that Better Times Will Come 

Oh well done for getting through to the end. Good luck with that bell. Ring it off the wall! 

Shell12 You just have to get through X amount of weeks where food tastes rubbish , can recommend weetabix heated up with blackberries. Just tried abit of vegetable quiche and was able to eat  the pastry. All the Best Regards Min