Hi All
Just a quickie- one of the things i am constantly reminded to do during this ...journey is to 'stay positive', and im chided if i show any of my fears or worries and god help me if i even consider discussing the risk of metastasis.
The idea seems to be that you beat cancer with positivity! which i find silly as it insinuates those who died from it weren't 'positive enough'
I know people mean well, but i find it increasingly annoying and difficult to respond to, at times i am depressed, scared etc and dont want to be positive! and at times i want to discuss risks of complications not blindly pretend nothing can go wrong
Is this just me? What phrases have people used on you that you find frustrating?
As an aside this site has been a genuine life saver for me, because although i wish noone on this site had ever had cancer -everyone here gets it.
Trev
Yeah I get that a lot from. My work mates
I suppose if you've never been in this situation you find it hard to raise it
And some people feel. They need to say something to let you know they know
I'd prefer them not raising it
I think it's a experience we live through then just want to forget it
That's what you assume wins the battle and I admit you need a lot of positivity to get you through the treatments
But that alone don't win the war
Trev. I just learn to ignore it. I’ve always been a glass half empty girl. Positivity just doesn’t cut it for me. If you’re upbeat you simply have an easier time of it but miserable people get cured too.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Trev whinge away we don’t mind. I was positive that the b ....r wasn’t going to get me. I do get well meaning friends who comments like my friend had x y z cancer and she can eat. what she wants to. So I smile and say Umm but I eat with my mouth which was burnt and chemically poisoned so maybe that’s something to do with me not managing a vindaloo (put many other foods in its place )
Onwards n upwards
Hazel we all get there in the end although I think chilli will always be a no no for me .
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hello Trev. Don't get me started on the comments. The majority are "can you eat normally again now", even if I have told them it may never be 100% as it was (a hundred times before). No one seems to get it. That's why this site is such a relief-everyone gets it. The nicest comments I've had are "you're an inspiration", don't know whether that's just because I'm still alive or just people genuinely think that's a more positive comment.
That said. I leaned on my hypnotherapist heavily after treatment as I too get scared, have negative days and needed something better to focus on. He understands. He is 14 years post treatment for neck cancer and (funnily enough), his London Marsden consultant told him that 70% of the battle was a positive attitude, so who knows !! I try and stay upbeat but it's damned hard work sometimes.
Tricia
No don’t apologise
Youve probably done quite a few people a favour. They can come here to stamp about
There are plenty of us who feel the same
I’ve tried hard to not be a cancer patient. I’m me just different. I couldn’t let the cancer go though but didn’t want it to define me so I channel that into trying to help others.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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