Throughout my care i have asked my team about dental care, no one looked at my teeth before treatment due to COVID, I had to stop using my normal toothpaste as it hurt so much, I asked the team what to use, they recommended children’s toothpaste which I’ve been using since and it’s fine, they said I could go back to my normal toothpaste when it didn’t hurt, so this is what I’ve done but it has caused ulcers and my tongue has been stinging since. I’m really confused as the children’s paste is low fluoride but everyone on here says high is better. I was prescribed gelclair once 4 weeks post treatment but told it was a one off. I was only told this week (14 weeks post) that I should still be using a salt mouth rinse, I stopped after 8 weeks (no communication with them 8-14weeks). Can someone recommend a toothpaste, mouthwash I can buy as the hospital won’t prescribe it. I don’t have an NHS dentist and doubt any will accept me now
Thank you Pamela
Try Oranurse toothpaste which has no flavour and no SLS
Bioxtra mouthwashes is gentle and has fluoride. You might get that on prescription.
Duraphat 5000 is the toothpaste to go for but it has the SLS that causes ulcers. It took me 18 months to be able to use that and even now I have to have a week off now and then and use Oranurse.
I go to the hygienist every three months to get a fluoride varnish
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Thanks Dani, I’m assuming SLS is sodium lauryl sulphate, I’ve just found that on my normal toothpaste, does this cause ulcers? It definitely would appear to in my case, I had only just got rid of them all lol
just ordered the oranurse, 3 for £10, not too bad
Pamela
No. Toxicity studies show it’s safe. There are other parabens that are banned but not methyl.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Sounds like you've been through a rough time with your dental care lately. First off, it's good to know that fluoride is a key ingredient in keeping our teeth strong and healthy. It helps prevent cavities and protect our enamel, the outer layers that strengthen teeth. So, using toothpaste with fluoride in it can be a good idea.As for the low-fluoride toothpaste you were using - it sounds like it wasn't the right choice for you, which is why it caused ulcers and stinging. I'd recommend trying out a toothpaste with a higher concentration of fluoride and see if that makes a difference.
it's good to know that fluoride is a key ingredient in keeping our teeth strong and healthy.
Particularly after RT. It’s drummed into all of us and we are on high fluoride prescription toothpaste for life
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Pamela - I’d personally try to forge ahead with the Duraphat as it provides the highest fluoride content you need to help protect your mouth/teeth. Maybe try using a really small amount then build up your resistance to it over a period of time?
I use the Cosodyl Daily Mild Mint Mouthwash which is still pretty caustic but what I did was mix it 50/50 with water to tone down the harshness. I can’t actually gargle with it as I’d drown because of the state of my throat so I just use it as a mouthwash/slosh if you know what I mean! I’m nearly 5 years down the line from treatment and my mouth is very sensitive so for the tenderness hasn’t really ever gone away so I think it’s getting a balance between using a product that you know is actually doing a job and judging that against the discomfort of actually doing it.
Can your GP prescribe anything or are you waiting to see what recommendation come up and then ask GP?
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007