Revisit...Post Right Tonsil Cancer SCC- HPV+

Hi Julsey good to hear from you. Scary how time flies remember you from treatment days. 4 years in 31 August for me. Happily living my life.  As you say time will pass. 
Hazel 

Hi Welcome to the club none of us wanted to join. I didn’t have surgery just biopsy and then 35 radiotherapy sessions and 2 chemotherapy.Let us know a bit more about  your partner and has chemo radiation been mentioned. Keep off Dr Google you’ll frighten yourself silly. Ask on here you can start your own thread by clicking new thread on left hand side. 
Take everything one day at a time. I was 61 when diagnosed am nearly 4 years post treatment now. 
Best wishes Hazel

julesey7 said:

I’ve moved on and life is good again xxx

Hi julesey. It’s great you’re feeling so well and that you’re still dipping in xxx

Hi there - I only popped on because I saw this post from coco - glad you’re feeling well - this forum was simply a life saver back then in the dark times - I just want to give some hope to the newbies - we get there don’t we xx no choice 

Hi hazel - glad to hear from you, was rough times but we made it, lovely to hear from you, it’s nice to be able to give people some positivity and tell them that it will get better, one step at a time x 

Hiiiiiiii there yea it’s been a while hasn’t it - time has flown hope you’re well? X

Great to read such a positive update. Did you try anything to improve saliva or did it do so by itself? Thanks

I used xylimelts at night and I tried salegen tablets from doctors. Xylimelts were amazing at night when things got bad at the end of radiotherapy, they helped massively at night and prevented me waking up through dryness. Would totally recommend them although can get expensive but I’d of paid anything at that point. I still get dry spells but I’d say I have 90% moisture back 

Hi Cocoelair and welcome.  Sorry you have had to come on here, but now you are here lets see what we can do to help you.

It is really difficult for a partner when their other half is undergoing cancer treatment.  Just remember that you need to look after yourself so you can help your partner. The surgery is pretty standard for the surgical option, expect that there may be some radiotherapy offered as a safety net.  Not always as many of us will testify to.  Tonsils will hurt like hell for around 12 days then suddenly get better.  Both of you hold onto that fact!

As to " do or say" I feel the best thing is to be open with your partner and support them as best as you can.  They will need help after surgery and also if they have radiotherapy.  Always hold onto the fact that HPV SCC is very curable - note CURABLE not just treatable.  Many will testify to having a good quality of life, different but still good, after treatment and onwards into the future.  With this cancer and its treatment it is time for healing that needs to be allowed.  Most of us a impatient to get on and need to listen to our bodies and allow some slack for healing.  Maybe expect an 18 month plus treatment/healing cycle.  Good luck going forwards and remember we are hear to support and share experiences.