Saliva - SCC - Tonsil Cancer HPV16

Hi.  Thanks for replying.  My husband used Biotene but it ended up not of very much use to him - the dryness was so bad he had an awful cough (which is apparently normal), and so night time was a really big issue.  We also found Biotene difficult to get at that time.

After having his feeding tube removed and moved back to food, eating wise, he got fed up with water, because at times water was a struggle for him so he used full fat milk because it is a thicker liquid and it also helped with gaining weight again.  I also bought a bottle of Crusha and vanilla ice cream for making milk shakes because fizzy drinks were the drinks from hell (but that is starting to change).  He also uses mayonnaise with food and one of the things he started to use was sweet chilli sauce, sometimes mixed with mayo as it takes the heat out the chilli, but still gives flavour. I found myself making quite a lot of thick gravy for him, which still really helps for chicken and meat.  He also breaks his food down into small pieces.  I found that soups were his saviour too, so for a time I made loads of different soup so that he didn't get bored.   Chicken & Sweetcorn soup was easy for him to eat.

I've found that it's very much a 'try it and see' process, so one thing we say is 'Keep Pushing' because I still see some form of change in the condition 14 months after his 'all clear', so hang in there.  I won't lie, it's a difficult journey.  If I can think of anything else I will post it.

Have a good day!

Hi, Thanks for the information, I've just had my feeding tube removed and therefore need to make the effort to eat, I'm also using fortisip drinks to increase my calorie intake as I've lost quite a lot of weight. Looks like I'll have to experiment and find out what works best. All the best.

Add tinned peaches in cream and poached eggs to Tracy’s list. Slippery and easy to slide down 

Thanks!!

Hi,

Please can someone advise where I can get these in the UK? I've looked on Amazon but cant find the same version as in the photo. Tried Superdrug and Boots, but no luck. Thanks

HERE or HERE

Thanks!!

I've just received my first box of Xylimelts. I don't have any real problems at night but, hoping they help during the day with the odd food I still struggle to eat a lot of-meat. Fingers crossed. I bought them via Amazon but, I have just stumbled across a charity hope2sleep (in Hull) that look like they could be slightly cheaper than I paid although I didn't look at PnP fees etc.

Hi Loftyboy.  Another food thing you could try is Ambrosia creamed rice.  You can get individual pots of these, or tinned custard.  These might help if you want something sweet.

Tracy

Hi Piya10.   If it’s any consolation, my husband still struggles to eat red meat.  No matter what way I’ve cooked it he can’t manage to eat it, so I’m hoping that may change with time.  Lamb he can eat if cooked very soft and chicken he eats with lots of gravy.

Best Wishes

Tracy